Last few blogs

Read the last few posts that I have written. Click on the picture or the blue title.

They will be found scattered around the website. I think there is a logic to where each post is to be found. To find out where just click on the picture then when the post is on your screen just look at the very top line. This will take you through the menu tabs you have to go through to find the post and other related posts.

Paying people who receive benefits

Paying people who receive benefits

I recently attended a one day seminar on ‘paying people who receive benefits’. Typically these people are service users. How can I condense an intense six hour seminar into 500 words? Not easy, so here are a few important points. Paying people who receive benefits is not straight forward. The rules are complex. Also the […]

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2 comments

Toastmasters humorous table topics competition

Toastmasters humorous table topics competition

I have been a member of Toastmasters for several years. The first Toastmasters competition for me and I had reached the second round of the Toastmasters humorous table topics competition. Toastmasters humorous Table Topics competition Table topics, you either hate ‘em or love ‘em. Just make an impromptu unrehearsed speech on a random topic lasting […]

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2 comments

MS society walk

MS society walk

On Sunday, 24 September I went to Battersea Park in London to take part in the MS society walk. I left the house at a 8:45, caught the train to Euston and arrived at the start just after 11. I had hoped to be there earlier. Getting to Battersea Park from Euston station by public […]

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8 comments

Expert by Experience

Expert by Experience

I have never liked the term ‘Service User’. Would I rather be called a ‘Client’ or a ‘Patient’? No I don’t like them either. I think the term ‘Co Worker’ is okay but not perfect. I do like the idea of Expert by Experience. It is a positive description. In the video just below I […]

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FCAROLYN silk eye patch

FCAROLYN silk eye patch

Double vision is possibly my biggest hidden disability. In April 2015 it reached a critical point. My optician could no longer correct the problem using prisms in my glasses. He came up with an ingenious solution that still I use today but it requires specific glasses frames. I recently discovered the FCAROLYN Silk Eye Patch […]

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2 comments

Every morning I have to stretch my stiff muscles

Every morning I have to stretch my stiff muscles

Getting straight out of bed and immediately walking into the bathroom, don’t make me laugh :-). Every morning I have to stretch my stiff muscles. What did I do in my sleep? Was I racing Mo Farah last night or was it just a nightmare? Whatever it was, it has left my muscles scrunched up. An […]

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6 comments

Mobility scooter needs a bus permit

Mobility scooter needs a bus permit

In late July as I was getting onto a bus at High Wycombe the Arriva bus driver said “The mobility scooter needs a bus permit. Can I see it” Arriva are responsible for running all the buses in the towns close to where I live. I have to use the buses because double vision makes driving […]

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12 comments

Parallel London sponsored walk

Parallel London sponsored walk

I’ve just completed the 1 km Parallel London sponsored walk and raised over £1300. The walk was the easy bit. There was a place to start, I had my Rollator, the route was marked out and there was a finish. The journey to arrive was the nightmare. I set my alarm for 8 o’clock on Sunday […]

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8 comments

Two stories using my Travelscoot

Two stories using my Travelscoot

I have owned a TravelScoot since 2010. Here are two stories using my Travelscoot. Just in case you didn’t know the Travelscoot is the lightest mobility scooter, has a unique design and is practical in so many ways. Two stories using my Travelscoot It is known affectionately as The Trike. Everywhere I go The Trike […]

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10 comments

Walking frame net bag

Walking frame net bag

I have to use a two wheeled walker to help me move around the house on the first floor. If I don’t use one I can’t walk and I fall over – so it’s a no brainer. I do not want to carry anything that does not fit in my pockets. This makes life a […]

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0 comments

Progressive multiple sclerosis treatment

Progressive multiple sclerosis treatment

Options for progressive multiple sclerosis treatment are non-existent. If you have recently been diagnosed with MS then there are treatments available to reduce and even stop progression. That is fantastic news but it is too late for so many people. I am one of those people If you have progressive MS then the outlook is […]

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8 comments

Multiple sclerosis is a funny old disease

Multiple sclerosis is a funny old disease

Multiple sclerosis is a funny old disease. No it is definitely not funny ha ha. Trying to get my head around continual progression ain’t easy. There are always changes and it catches me out. I just get the hang of what’s happening then there is a bit more progression. Multiple sclerosis is a funny old […]

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9 comments

Life before diagnosis of multiple sclerosis

Life before diagnosis of multiple sclerosis

I was diagnosed with multiple sclerosis in 1995 but my journey started much earlier. In 1972 when I was nearly 18 I was in the pub having some beers with a couple of friends. Suddenly I had the urge to go to the loo but when I went nothing happened. I didn’t think anything of […]

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Sometimes I cannot get out of first gear

Sometimes I cannot get out of first gear

We can all have good days and bad days. People with Multiple Sclerosis seem to have more bad days than good days. Just at the moment I’m not sleeping well. During the day sometimes I cannot get out of first gear. It is sooooo frustrating. It is an invisible symptom. Just at the moment I’m […]

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Help Patrick to walk one kilometre

Help Patrick to walk one kilometre

Can you walk 1000 metres? It’s not a big deal is it? You might think nothing of nipping upstairs to brush your teeth. What about putting the rubbish bins outside each week? Maybe you need to pop to the shop and buy some cheese. You might do a bit of sport or even go to […]

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Can I walk at least six kilometres

Can I walk at least six kilometres

On 24th September 2017 the MS Society is organising a sponsored walk called ‘Together we walk’. On their website they state ‘This September hundreds of MS Superstars, our friends and families, will join forces in London to take in the sights and raise funds to stop MS. Will you join us?’  http://bit.ly/2blg64f Can I walk […]

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8 comments

Flying with a significant mobility problems

Flying with a significant mobility problems

Flying with significant mobility problems is not an issue, trust me. There is plenty of assistance at hub airports and it is there to help. I have done a shed load of flights as a disabled person. In 2008 I was at Gatwick doing an enormous walk to the departure gate and I fell over. […]

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6 comments

Action packed couple of days in Barcelona

Action packed couple of days in Barcelona

I flew out to Barcelona for a couple of days. I took The Trike with me as one does.  No, I was not going on a holiday. It was for a meeting with RADAR-CNS. A research project wanting to develop ways to measure Long Term Conditions using wearable devices and smartphone technology. I was there as a […]

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2 comments

Totally unrestricted and able to move easily

Totally unrestricted and able to move easily

There was a wonderful time when I had felt totally unrestricted and able to move easily. Even on the fateful day in 1995 when the consultant diagnosed me with multiple sclerosis I was just a normal guy. Multiple sclerosis, I had never heard of it. I had to look it up in an encyclopaedia and […]

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14 comments

Think about the positives

Think about the positives

Too many people with progressive MS suffer in the heat, I know I do. I’m not naturally lazy its just that I am clobbered by the heat. The energy just drains out of my body and worse if its humid as well. Two hot days and already I’m apprehensive of the summer. I must remember […]

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2 comments

Penultimate visit for the MS SMART drug trial

Penultimate visit for the MS SMART drug trial

My penultimate visit for the MS SMART drug trial was always going to be a very short visit. Replace the old pills with a new set. These will then see me through for the final six months of the trial. I also give some blood, how I hate injections, I even have to shut my […]

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4 comments

Reasons why I enjoy my Travelscoot

Reasons why I enjoy my Travelscoot

I first saw a Travelscoot in the summer of 2010. Straight away I knew it was going to be the ideal solution for me. By then multiple sclerosis had limited my walking to the extent that I struggled to walk more than a mile. Up until then I had managed with a manual wheelchair but […]

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26 comments