Last few blogs

Read the last few posts that I have written. Click on the picture or the blue title.

They will be found scattered around the website. I think there is a logic to where each post is to be found. To find out where just click on the picture then when the post is on your screen just look at the very top line. This will take you through the menu tabs you have to go through to find the post and other related posts.

Progressive multiple sclerosis treatment

Progressive multiple sclerosis treatment

Options for progressive multiple sclerosis treatment are non-existent. If you have recently been diagnosed with MS then there are treatments available to reduce and even stop progression. That is fantastic news but it is too late for so many people. I am one of those people If you have progressive MS then the outlook is […]

Read More...

2 comments

Multiple sclerosis is a funny old disease

Multiple sclerosis is a funny old disease

Multiple sclerosis is a funny old disease. No it is definitely not funny ha ha. Trying to get my head around continual progression ain’t easy. There are always changes and it catches me out. I just get the hang of what’s happening then there is a bit more progression. Multiple sclerosis is a funny old […]

Read More...

9 comments

Life before diagnosis of multiple sclerosis

Life before diagnosis of multiple sclerosis

I was diagnosed with multiple sclerosis in 1995 but my journey started much earlier. In 1972 when I was nearly 18 I was in the pub having some beers with a couple of friends. Suddenly I had the urge to go to the loo but when I went nothing happened. I didn’t think anything of […]

Read More...

0 comments

Sometimes I cannot get out of first gear

Sometimes I cannot get out of first gear

We can all have good days and bad days. People with Multiple Sclerosis seem to have more bad days than good days. Just at the moment I’m not sleeping well. During the day sometimes I cannot get out of first gear. It is sooooo frustrating. It is an invisible symptom. Just at the moment I’m […]

Read More...

0 comments

Help Patrick to walk one kilometre

Help Patrick to walk one kilometre

Can you walk 1000 metres? It’s not a big deal is it? You might think nothing of nipping upstairs to brush your teeth. What about putting the rubbish bins outside each week? Maybe you need to pop to the shop and buy some cheese. You might do a bit of sport or even go to […]

Read More...

0 comments

Can I walk at least six kilometres

Can I walk at least six kilometres

On 24th September 2017 the MS Society is organising a sponsored walk called ‘Together we walk’. On their website they state ‘This September hundreds of MS Superstars, our friends and families, will join forces in London to take in the sights and raise funds to stop MS. Will you join us?’  http://bit.ly/2blg64f Can I walk […]

Read More...

8 comments

Flying with a significant mobility problems

Flying with a significant mobility problems

Flying with significant mobility problems is not an issue, trust me. There is plenty of assistance at hub airports and it is there to help. I have done a shed load of flights as a disabled person. In 2008 I was at Gatwick doing an enormous walk to the departure gate and I fell over. […]

Read More...

6 comments

Action packed couple of days in Barcelona

Action packed couple of days in Barcelona

I flew out to Barcelona for a couple of days. I took The Trike with me as one does.  No, I was not going on a holiday. It was for a meeting with RADAR-CNS. A research project wanting to develop ways to measure Long Term Conditions using wearable devices and smartphone technology. I was there as a […]

Read More...

2 comments

Capability for Work questionnaire

Capability for Work questionnaire

Every once in a while the postman delivers a letter and I think ‘Uh oh this could be trouble’. On the front of this letter in big black letters I was told ‘IMPORTANT INFORMATION THIS IS NOT A CIRCULAR’ and it was ‘PRIVATE &  CONFIDENTIAL’. The really important clue was the sender, printed on the back […]

Read More...

2 comments

Totally unrestricted and able to move easily

Totally unrestricted and able to move easily

There was a wonderful time when I had felt totally unrestricted and able to move easily. Even on the fateful day in 1995 when the consultant diagnosed me with multiple sclerosis I was just a normal guy. Multiple sclerosis, I had never heard of it. I had to look it up in an encyclopaedia and […]

Read More...

14 comments

Think about the positives

Think about the positives

Too many people with progressive MS suffer in the heat, I know I do. I’m not naturally lazy its just that I am clobbered by the heat. The energy just drains out of my body and worse if its humid as well. Two hot days and already I’m apprehensive of the summer. I must remember […]

Read More...

2 comments

Penultimate visit for the MS SMART drug trial

Penultimate visit for the MS SMART drug trial

My penultimate visit for the MS SMART drug trial was always going to be a very short visit. Replace the old pills with a new set. These will then see me through for the final six months of the trial. I also give some blood, how I hate injections, I even have to shut my […]

Read More...

4 comments

The Wife and I flew to Barcelona from Luton airport

The Wife and I flew to Barcelona from Luton airport

When I am going on holiday I start at point A, have my holiday at point B then return to point A at the end of the holiday. In this case it was a five day city break in Barcelona. The Wife and I flew to Barcelona from Luton airport. What can I say about […]

Read More...

2 comments

Stumble fall crunch and wallop

Stumble fall crunch and wallop

Monday evening We had finished watching episode 5 of Line of Duty. No spoilers I promise. Program finished and we were done. All that was left was to clear up the room and toddle off to bed. The Wife had taken the glasses through to the kitchen. All I had to do was switch off […]

Read More...

4 comments

I love my Taotronics LED desk lamp

I love my Taotronics LED desk lamp

I bought a Taotronics light over a year ago and I have not broken it yet; that is a good start.. It is an energy-saving and eco-friendly lamp.  I guess these features make up for the terrible title to this blog so if you have read this much you might read the rest of the […]

Read More...

0 comments

Another sponsored walk

Another sponsored walk

Well it’s another year and I am starting to think about one of my annual challenges. I like to have challenges. They have to be achievable and put me outside of my comfort zone. So time for another sponsored walk. The right distance In 2015 I had tried to walk a mile with my rollator […]

Read More...

2 comments

Another milestone in the inevitable progression of my MS

Another milestone in the inevitable progression of my MS

Something has definitely changed in the last few weeks. It was not an ‘Oh my God’ moment as in a flash of inspiration. Instead it was an ‘Oh my God’ realisation and it took a few weeks for me to understand. Let’s call it another milestone in the inevitable progression of my MS. Life moves […]

Read More...

2 comments

Some reasons why I enjoy my Travelscoot

Some reasons why I enjoy my Travelscoot

I first saw a Travelscoot in the summer of 2010. Straight away I knew it was going to be the ideal solution for me. By then multiple sclerosis had limited my walking to the extent that I struggled to walk more than a mile. Up until then I had managed with a manual wheelchair but […]

Read More...

26 comments

Bed is the only place for you

Bed is the only place for you

Thursday 30th of April arrived I felt decidedly second-hand when I woke up and it went downhill from there. I felt as if I had been rejected by the local rubbish dump. Eventually I retired to bed very early in the evening. The Wife took my temperature, 38.3 and added. “Yup, bed is the only […]

Read More...

0 comments

Feeling of being flattened by a steamroller

Feeling of being flattened by a steamroller

Do you remember a blog I wrote a month ago? The Department of Work and Pensions (DWP) summoned me to an interview. I arrived at the appointed hour and came out 30 minutes later feeling as if I had been mauled by an angry lion or flattened by a steam roller. This will definitely not rank […]

Read More...

2 comments

The Wife and I went on a London Road Trip

The Wife and I went on a London Road Trip

The Wife and I went on a London road trip on Saturday 18th March. See the Hockney exhibition at the Tate Britain and then on to the Coliseum to see Pirates of Penzance. It’s always the other little events that make the day interesting. The Road Trip The Wife and I travelled into London independently. […]

Read More...

2 comments