Last few blogs

Read the last few posts that I have written. Click on the picture or the blue title.

They will be found scattered around the website. I think there is a logic to where each post is to be found. To find out where just click on the picture then when the post is on your screen just look at the very top line. This will take you through the menu tabs you have to go through to find the post and other related posts.

Can the elephant stay out of the room

Can the elephant stay out of the room

In February 2017 I wrote a blog about getting Botox injections for my bladder. Looking back it makes an enormous difference to my life. It changed, totally changed. Suddenly I did not have to worry about finding the loo or embarrassing myself. It was as if an enormous elephant had left the room. Describe it […]

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9 comments

Does my disability make me worth less?

Does my disability make me worth less?

So Christmas is done and dusted for another year. Decorations have been taken down and put in the loft. The Boy Scouts have collected the tree and recycled it. We’ve even managed to empty the fridge. Now wouldn’t it be lovely if I could just pack up my MS and store that in the loft […]

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8 comments

Three weeks of taking Fampridine

Three weeks of taking Fampridine

Friday, 22 December, I think that date will be etched on my memory for many years. Three weeks of taking Fampridine. I knew it’d helped me but the icy test was going to be measuring my new walking speed. Had Fampridine increased my walking speed enough for me to receive it on prescription? Three weeks […]

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7 comments

My MS clock has gone back a couple of years

My MS clock has gone back a couple of years

I started taking Fampridine just over a couple of weeks ago. Yes, YEs, YES it really has worked. Right now I’m not too sure if my walking speed has increased sufficiently to receive the drug beyond the trial period. That it will be a bummer. Put walking speed to one side then so many other […]

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8 comments

Will Fampridine improve my quality of life

Will Fampridine improve my quality of life

The physiotherapists at Queens Square neurological hospital offered me Fampridine in the summer of 2017. I knew that Fampridine also known as Fampyra could improve my walking speed. Sadly it doesn’t make the process any safer. None the less I reckoned it was worth trying out. Will Fampridine improve my quality of life When I […]

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11 comments

Dragon Dictation Software

Dragon Dictation Software

Over the last couple of years MS has stolen the dexterity from my fingers. Years ago I tried to teach myself touch typing with no success. My finger tips are numb, thanks MS, so I can’t feel the bar on the keyboard for the letters J and F. I struggled on, typing was horribly erratic […]

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8 comments

Getting the best from my life

Getting the best from my life

Enjoying life, it is the reason to get out of bed each morning. Okay I do have a few problems but hey who doesn’t? I’ve had multiple sclerosis for over two thirds of my life and now I’m medically retired. I’m still learning the art of getting the best from my life. The biggest game […]

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13 comments

Just another little fall

Just another little fall

In the kitchen I must use a stool on wheels. The Wife and I were cooking supper last Sunday and everything was getting a bit fraught. Not enough pairs of hands to prepare everything. I moved forward on my stool but a wheel got stuck in the grouting between two floor tiles. The stool stopped […]

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3 comments

Nobody mentioned grab rails

Nobody mentioned grab rails

I guess a few of you who are reading this have got that irritating little disease, multiple sclerosis. It’s the way it advances. Step by step it creeps up on you. It’s funny how something that wasn’t a problem changes and becomes a problem. Even worse, suddenly its an ‘in your face’ problem. We had […]

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6 comments

Disabled access is not a tick box exercise

Disabled access is not a tick box exercise

Access and facilities for physically disabled people are needed today and why ever not? It would be so unreasonable in this day and age to exclude the physically disabled from our activities. From my experience disabled access is turning into a tick box exercise. Remember disabled access is not a tick box exercise. Disabled access […]

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12 comments

Paying people who receive benefits

Paying people who receive benefits

I recently attended a one day seminar on ‘paying people who receive benefits’. Typically these people are service users. How can I condense an intense six hour seminar into 500 words? Not easy, so here are a few important points. Paying people who receive benefits is not straight forward. The rules are complex. Also the […]

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2 comments

Toastmasters humorous table topics competition

Toastmasters humorous table topics competition

I have been a member of Toastmasters for several years. The first Toastmasters competition for me and I had reached the second round of the Toastmasters humorous table topics competition. Toastmasters humorous Table Topics competition Table topics, you either hate ‘em or love ‘em. Just make an impromptu unrehearsed speech on a random topic lasting […]

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2 comments

MS society walk

MS society walk

On Sunday, 24 September I went to Battersea Park in London to take part in the MS society walk. I left the house at a 8:45, caught the train to Euston and arrived at the start just after 11. I had hoped to be there earlier. Getting to Battersea Park from Euston station by public […]

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8 comments

Expert by Experience

Expert by Experience

I have never liked the term ‘Service User’. Would I rather be called a ‘Client’ or a ‘Patient’? No I don’t like them either. I think the term ‘Co Worker’ is okay but not perfect. I do like the idea of Expert by Experience. It is a positive description. In the video just below I […]

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0 comments

FCAROLYN silk eye patch

FCAROLYN silk eye patch

Double vision is possibly my biggest hidden disability. In April 2015 it reached a critical point. My optician could no longer correct the problem using prisms in my glasses. He came up with an ingenious solution that still I use today but it requires specific glasses frames. I recently discovered the FCAROLYN Silk Eye Patch […]

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2 comments

Every morning I have to stretch my stiff muscles

Every morning I have to stretch my stiff muscles

Getting straight out of bed and immediately walking into the bathroom, don’t make me laugh :-). Every morning I have to stretch my stiff muscles. What did I do in my sleep? Was I racing Mo Farah last night or was it just a nightmare? Whatever it was, it has left my muscles scrunched up. An […]

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6 comments

Mobility scooter needs a bus permit

Mobility scooter needs a bus permit

In late July as I was getting onto a bus at High Wycombe the Arriva bus driver said “The mobility scooter needs a bus permit. Can I see it” Arriva are responsible for running all the buses in the towns close to where I live. I have to use the buses because double vision makes driving […]

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14 comments

Parallel London sponsored walk

Parallel London sponsored walk

I’ve just completed the 1 km Parallel London sponsored walk and raised over £1300. The walk was the easy bit. There was a place to start, I had my Rollator, the route was marked out and there was a finish. The journey to arrive was the nightmare. I set my alarm for 8 o’clock on Sunday […]

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8 comments

Two stories using my Travelscoot

Two stories using my Travelscoot

I have owned a TravelScoot since 2010. Here are two stories using my Travelscoot. Just in case you didn’t know the Travelscoot is the lightest mobility scooter, has a unique design and is practical in so many ways. Two stories using my Travelscoot It is known affectionately as The Trike. Everywhere I go The Trike […]

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14 comments

Progressive multiple sclerosis treatment

Progressive multiple sclerosis treatment

Options for progressive multiple sclerosis treatment are non-existent. If you have recently been diagnosed with MS then there are treatments available to reduce and even stop progression. That is fantastic news but it is too late for so many people. I am one of those people If you have progressive MS then the outlook is […]

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10 comments

Multiple sclerosis is a funny old disease

Multiple sclerosis is a funny old disease

Multiple sclerosis is a funny old disease. No it is definitely not funny ha ha. Trying to get my head around continual progression ain’t easy. There are always changes and it catches me out. I just get the hang of what’s happening then there is a bit more progression. Multiple sclerosis is a funny old […]

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9 comments

Life before diagnosis of multiple sclerosis

Life before diagnosis of multiple sclerosis

I was diagnosed with multiple sclerosis in 1995 but my journey started much earlier. In 1972 when I was nearly 18 I was in the pub having some beers with a couple of friends. Suddenly I had the urge to go to the loo but when I went nothing happened. I didn’t think anything of […]

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