2017

Getting the best from my life

Getting the best from my life

Enjoying life, it is the reason to get out of bed each morning. Okay I do have a few problems but hey who doesn’t? I’ve had multiple sclerosis for over two thirds of my life and now I’m medically retired. I’m still learning the art of getting the best from my life. The biggest game […]

Read More...

13 comments

Disabled access is not a tick box exercise

Disabled access is not a tick box exercise

Access and facilities for physically disabled people are needed today and why ever not? It would be so unreasonable in this day and age to exclude the physically disabled from our activities. From my experience disabled access is turning into a tick box exercise. Remember disabled access is not a tick box exercise. Disabled access […]

Read More...

12 comments

Paying people who receive benefits

Paying people who receive benefits

I recently attended a one day seminar on ‘paying people who receive benefits’. Typically these people are service users. How can I condense an intense six hour seminar into 500 words? Not easy, so here are a few important points. Paying people who receive benefits is not straight forward. The rules are complex. Also the […]

Read More...

2 comments

Toastmasters humorous table topics competition

Toastmasters humorous table topics competition

I have been a member of Toastmasters for several years. The first Toastmasters competition for me and I had reached the second round of the Toastmasters humorous table topics competition. Toastmasters humorous Table Topics competition Table topics, you either hate ‘em or love ‘em. Just make an impromptu unrehearsed speech on a random topic lasting […]

Read More...

2 comments

Multiple sclerosis is a funny old disease

Multiple sclerosis is a funny old disease

Multiple sclerosis is a funny old disease. No it is definitely not funny ha ha. Trying to get my head around continual progression ain’t easy. There are always changes and it catches me out. I just get the hang of what’s happening then there is a bit more progression. Multiple sclerosis is a funny old […]

Read More...

9 comments

Sometimes I cannot get out of first gear

Sometimes I cannot get out of first gear

We can all have good days and bad days. People with Multiple Sclerosis seem to have more bad days than good days. Just at the moment I’m not sleeping well. During the day sometimes I cannot get out of first gear. It is sooooo frustrating. It is an invisible symptom. Just at the moment I’m […]

Read More...

0 comments

Action packed couple of days in Barcelona

Action packed couple of days in Barcelona

I flew out to Barcelona for a couple of days. I took The Trike with me as one does.  No, I was not going on a holiday. It was for a meeting with RADAR-CNS. A research project wanting to develop ways to measure Long Term Conditions using wearable devices and smartphone technology. I was there as a […]

Read More...

2 comments

Capability for Work questionnaire

Capability for Work questionnaire

Every once in a while the postman delivers a letter and I think ‘Uh oh this could be trouble’. On the front of this letter in big black letters I was told ‘IMPORTANT INFORMATION THIS IS NOT A CIRCULAR’ and it was ‘PRIVATE &  CONFIDENTIAL’. The really important clue was the sender, printed on the back […]

Read More...

2 comments

The Wife and I flew to Barcelona from Luton airport

The Wife and I flew to Barcelona from Luton airport

When I am going on holiday I start at point A, have my holiday at point B then return to point A at the end of the holiday. In this case it was a five day city break in Barcelona. The Wife and I flew to Barcelona from Luton airport. What can I say about […]

Read More...

2 comments

Stumble fall crunch and wallop

Stumble fall crunch and wallop

Monday evening We had finished watching episode 5 of Line of Duty. No spoilers I promise. Program finished and we were done. All that was left was to clear up the room and toddle off to bed. The Wife had taken the glasses through to the kitchen. All I had to do was switch off […]

Read More...

4 comments

Bed is the only place for you

Bed is the only place for you

Thursday 30th of April arrived I felt decidedly second-hand when I woke up and it went downhill from there. I felt as if I had been rejected by the local rubbish dump. Eventually I retired to bed very early in the evening. The Wife took my temperature, 38.3 and added. “Yup, bed is the only […]

Read More...

0 comments

Feeling of being flattened by a steamroller

Feeling of being flattened by a steamroller

Do you remember a blog I wrote a month ago? The Department of Work and Pensions (DWP) summoned me to an interview. I arrived at the appointed hour and came out 30 minutes later feeling as if I had been mauled by an angry lion or flattened by a steam roller. This will definitely not rank […]

Read More...

2 comments

The Wife and I went on a London Road Trip

The Wife and I went on a London Road Trip

The Wife and I went on a London road trip on Saturday 18th March. See the Hockney exhibition at the Tate Britain and then on to the Coliseum to see Pirates of Penzance. It’s always the other little events that make the day interesting. The Road Trip The Wife and I travelled into London independently. […]

Read More...

2 comments

MS claims another activity this time a close shave

MS claims another activity this time a close shave

I have suffered from multiple sclerosis for more years than I care to remember.  Quite how I have managed to live this long has been a big surprise to both me and The Wife. Life has been a series of close shaves. Far more than I would ever want to admit. Diagnosed with MS in […]

Read More...

4 comments

Department for Work and Pensions invite me to a meeting

Department for Work and Pensions invite me to a meeting

The postman delivered a buff brown envelope on the 7th Feb. The Wife gave it to me. The return address was DWP, PO Box 585, Belfast. Straightaway I said, “Oh this is something about my disability allowance”. She made me open it. It was dated 1st February 2017. The basic gist of it was as follows. […]

Read More...

8 comments

MSitis and the story of the forgotten catheters

MSitis and the story of the forgotten catheters

Saturday 7 January 2017 and five of us go up to London to see The Dresser, a play starring Tom Stott and Reece Shearsmith showing at The Duke of York theatre. It was a great production, loved it but not so keen on the disabled loo in the theatre. Horribly cramped, in fact not enough […]

Read More...

0 comments