MS Quality of Life

I believe people who enjoy themselves, keep themselves busy have a better quality of life. MS can open up a big abyss and that ingredient that can help to maintain the quality of life can go missing.

Quality of life is important. Its almost a case of use it or lose it

A Letter to Multiple Sclerosis

A Letter to Multiple Sclerosis

A Letter to Multiple Sclerosis You first visited me a long time ago. It was 1972, I was 18 and having a pint or two of beer. I went to the loo for a pee but nothing happened. In 1979 I had a serious bladder spasm and I wet myself at work. You went away […]

Read More...

2 comments

Disabled University Lecturer Continues Campaigning

Disabled University Lecturer Continues Campaigning

Frank Adams, 50 from Holmfirth near Huddersfield who lives with severely restricted mobility, has continued to campaign and educate academic and non-academics about disability, thanks to a remarkable drive-from-wheelchair Sirus car. Frank’s career The majority of his career has been focused on improving accessibility for people living with disabilities. He was diagnosed with Polio at […]

Read More...

0 comments

Information you need to know

Information you need to know

I am going to tell you information that I think is important. One is about your consultant and the other refers to multiple sclerosis and the two are linked. This is information that my consultant Professor Giovannoni talks about in his blog and I feel it is vitally important that other people know this. It’s […]

Read More...

0 comments

Hyperbaric Oxygen Therapy

Hyperbaric Oxygen Therapy

What is hyperbaric oxygen (HBO) therapy? It is treatment when a patient breathes in pure oxygen while under increased air pressure. This increases the oxygen content in the blood and consequently in different body tissues. It is an accepted treatment for some medical conditions such as burns, decompression sickness or the bends, severe infections, radiation-induced tissue […]

Read More...

1 comment

You’ve Been Diagnosed with Multiple Sclerosis

You’ve Been Diagnosed with Multiple Sclerosis

 ‘You’ve been diagnosed with multiple sclerosis’ Six words you do not want to hear. Did not tick the box on the mortgage application form for life cover, I didn’t. Its too late now to insure your health, so you’ve just got to shrug your shoulders. Its even more important to plan for the future. Yup, […]

Read More...

0 comments

Manage Your Life and Depression

Manage Your Life and Depression

It’s not an easy task to manage your life and depression. It’s even worse if you have a progressive illness. Your life and your capabilities are being nibbled away bit by bit. It is no wonder that you feel sad and dejected maybe even rejected. Depression is curable Oh yes these are strong words but […]

Read More...

0 comments

Always Be Able To Ask For Help

Always Be Able To Ask For Help

With my MS one thing that is essential. I am always able to ask for help. I run out of steam Only too often I used to start a job such as cooking supper or mowing the lawn and half way through I would find I had run out of energy. I needed some else […]

Read More...

0 comments

Multiple sclerosis and stress

Multiple sclerosis and stress

Multiple sclerosis and stress, a bit like night following day Stress, a definition We think the demands being placed on us exceed our ability to cope. MS and stress If you have MS then stress is likely to be a constant companion. Its usually just hovering out of sight and gets you just when your […]

Read More...

0 comments

Pace your life

Pace your life

If you have multiple sclerosis then you must learn to pace your life. What does this mean? Initial ideas Be calm and be steady Learn to relax Always think before saying ‘Yes, I will be there” or “Yes, I will do …” Never be frightened to say “No, I’m too busy” or “OK, but lets […]

Read More...

0 comments

Dog agility Julie from Suffolk helps to raise over £1,200 for MS Society

Dog agility Julie from Suffolk helps to raise over £1,200 for MS Society

Julie Thomson, 53, from Stansted, has Multiple Sclerosis She successfully displayed her dog agility prowess on her amazing TGA Breeze 3 mobility scooter at Ace Agility’s fundraising event for the MS Society on Easter Sunday, helping to raise over £1,200. The event was held at Braggons Farm, Glemsford, Suffolk and was attended by over 120 […]

Read More...

2 comments

Right tools for the job

Right tools for the job

Multiple sclerosis is a progressive disease so your disabilities do change with time. Always use the aids that keep you safe It is vital that you always use the aids that keep you safe. The first thing to do, unless you have done it already, work out what causes you the biggest problem. Now concentrate on […]

Read More...

0 comments

Plan B

Plan B

Plan A & Plan B I nearly always plan out what I’m going to do, that’s plan A, then occasionally I think about plan B. Plan A & Plan B What to do in an emergency, its obvious but surprising how often I forget about it. I get halfway through the day, sit down and […]

Read More...

0 comments

Managing Day to Day Life With Multiple Sclerosis

Managing Day to Day Life With Multiple Sclerosis

Managing day to day life with multiple sclerosis is a roller coaster ride. One day you feel fine, the next you feel like a wrinkled balloon. Sometmes its a mental issue other times its a physical problem. Sometimes its both. I have passed the Relapse Remission stage of multiple sclerosis. For me its evolved into Secondary […]

Read More...

3 comments

Independence and Quality of Life

Independence and Quality of Life

I suffer from a progressive disease, I have less stamina now than 6 months ago, everything calls for a greater effort and it will only get worse. A couple of questions Do you think your disease is robbing you of your independence and taking away your quality of life?  What steps are you taking to […]

Read More...

5 comments

Christmas comes early for Julie Dean and family

Christmas comes early for Julie Dean and family

Christmas is a special time for many of us but for Julie Dean and family from Longwick this year’s will be a particularly happy and memorable one. Having been refused funding from their local council and giving up all hope of ever affording a much needed stairlift, Hertfordshire based company EMS Stairlifts came to their aid providing one completely free of charge […]

Read More...

0 comments

80 year old Shropshire farmer continues to run his farm

80 year old Shropshire farmer continues to run his farm

Robert Mund is 80, determined to run his farm, and his mobility is restricted because of two hip replacements. He relies on a rugged mobility scooter to manage his herd of 40 cattle. I hope that I can be equally active when I am 80. Robert Maund, 80, from Betton Strange near Shrewsbury, Shropshire, is […]

Read More...

0 comments

Assisted dying should be a right for all

Assisted dying should be a right for all

My trip to Dignitas with my ex-wife confirmed my belief that UK law must change – and inspired my play An Instinct for Kindness Chris Larne travelled to Switzerland to be with his wife when she died at a Dignitas hotel. His wife had been crippled by multiple sclerosis, it is a cruel disease for […]

Read More...

0 comments