MS-SMART

A trial for people with secondary progressive multiple sclerosis.

In the trial researchers will test the safety and effectiveness of amiloride (licensed to treat heart disease), fluoxetine (depression) or riluzole (motor neurone disease) against a dummy drug (placebo).

Penultimate visit for the MS SMART drug trial

Penultimate visit for the MS SMART drug trial

My penultimate visit for the MS SMART drug trial was always going to be a very short visit. Replace the old pills with a new set. These will then see me through for the final six months of the trial. I also give some blood, how I hate injections, I even have to shut my […]

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48 weeks so I am almost half way there

48 weeks so I am almost half way there

I started the MS–SMART trial on January 7th 2016 and I take the MS-SMART pill twice a day. Its now 48 weeks so I am almost half way there. This two year trial is looking at 3 different drugs to find out if there is some neuroprotection in any of them. 48 weeks so I […]

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Keeping the grey matter active

Keeping the grey matter active

I hope that this is a bit of a fun. How many times have you had to do something that’s looked easy? Then you realise that you need to think quite hard. Its called concentration or keeping the grey matter active :-0). Its called the Stroop effect Picture 1             […]

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MS-SMART and Anti-LINGO-1

MS-SMART and Anti-LINGO-1

At long last drugs are being tested to help slow down progression of SPMS. There are two trials in Phase 2 of the testing cycle. There is a good possibility something positive will be the result. The MS-SMART and Anti-LINGO-1 trials represent a real hope for us sufferers of SPMS. Each trial is evaluating how […]

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Strategy To Take The Pills

Strategy To Take The Pills

I will need a new strategy to take the pills after my second MS Smart visit. Very little happened except that the number of daily pills is now increased from 1 to 2 each day. They have to be taken as near to twelve hours apart as possible. It is the sort of thing that […]

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I started the MS Smart trial

I started the MS Smart trial

On 7th January 2016 I started the MS Smart trial. 3 drugs are being tested and the hope is that at least one of them will stop neurodegeneration. If you are not too sure what this means then call it shredding of the brain. People with Parkinson’s and Alzheimer’s suffer from the same problem. Three existing drugs […]

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MS SMART Trial

MS SMART Trial

I am excited because I have been asked to participate in the MS SMART trial. This is a trial for people with secondary progressive MS. 3 drugs have been selected. They have shown the potential to protect nerves from damage, which could ultimately stop or slow disability progression. For the trial you will be allocaed one of […]

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