Patrick’s Blog

I’m Patrick and I run this website. This is a rambling series of articles based around my life disabled with multiple sclerosis (M)S & how I cope. It became so big that I have had to break it down into small groups which you will see on the right hand side.

I am an optimist and like to see the happier side of life. I hope this comes through in these articles on my life with MSNo one likes a person who does not smile

Another milestone in the inevitable progression of my MS

Another milestone in the inevitable progression of my MS

Something has definitely changed in the last few weeks. It was not an ‘Oh my God’ moment as in a flash of inspiration. Instead it was an ‘Oh my God’ realisation and it took a few weeks for me to understand. Let’s call it another milestone in the inevitable progression of my MS. Life moves […]

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Sometimes I want a bit of stress

Sometimes I want a bit of stress

We can all recall moments when stress has got the better of us. Moments of bad stress might include road rage, trolley rage, package rage and even computer rage. All caused by heightened anger or frustration. Sometimes I want a bit of stress. Sometimes I want a bit of stress Stress like this lasts for […]

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Is liberation and freedom just a Botox away?

Is liberation and freedom just a Botox away?

On Wednesday 1st Feb I went to Queens Square to receive Botulinium Toxin or Botox injections into my bladder. I had wanted the injections for over two years. Life with a badly behaved as well as irritable bladder is no joke. I had learnt a lot of techniques to make life with this handicap easier. […]

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What would I like returned to me by Multiple Sclerosis?

What would I like returned to me by Multiple Sclerosis?

What would I like returned to me by Multiple Sclerosis? I’m talking about basic abilities, ones I have lost for ever. The list is far too long to bore you. In my dreams there is only I would like back. I’m sure it’s something lots of people take for granted. Right now I am really […]

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I wake up every night to visit the lavatory

I wake up every night to visit the lavatory

I saw my MS consultant for the annual visit in November 2016. He asked me if there were any changes since my last visit to the clinic. I said to him “Now I wake up every night to visit the lavatory and have a tiny pee”‘ I wake up every night to have a pee […]

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Going away for a short break

Going away for a short break

Going away for a short break used to be so easy. The hardest part was deciding where to go. The wife and I would finally agree on a place. From then on it was a simple process. Throw a few clothes into a suitcase, grab a book, car keys, wallet and the cheque book and […]

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WorldvsMS challenge and The Amsterdam HACK

WorldvsMS challenge and The Amsterdam HACK

The WordvsMS campaign is an initiative that had been setup to give a voice to people with Multiple Sclerosis. The campaign has asked people with MS to list their challenges in everyday life. Three challenges were accepted from 103 that were submitted A weekend in mid-November was selected when groups of people were invited to […]

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Finally I think progress is being made

Finally I think progress is being made

A couple of weeks ago I wrote a post expressing my frustration with trying to get Botox treatment for my bladder. If you missed the post and would like to read it then please click HERE. Yes, I was unbelievably frustrated. Overnight the hospital had shunted my appointment from the next day to March next […]

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Man still needs Botox for his bladder

Man still needs Botox for his bladder

I need Botox injections to control my bladder spasticity. This issue has been rocking around my locker for more than a couple of years. I have written about these problems far too often. You must be bored with them.  Even I admit this subject does not come top of my reading list. Well read on, […]

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Going back to Pilates

Going back to Pilates

I have missed my last four Pilates’ sessions. They are on a Friday morning but I have been away. Going back to Pilates was a bit like going back to school after the Easter or Christmas break. Going back to Pilates Don’t get me wrong I enjoy Pilates. It helps me with the biggest problem […]

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I use incontinence pads

I use incontinence pads

Oooo, this is a difficult subject It is something I had to man-up to quite seriously several years ago. I have had bladder problems since I was a young man, multiple sclerosis has a lot to answer for 🙁 Nowadays I use incontinence pads because of the irritable bladder. I only wear normal underwear The […]

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Its when the unexpected happens

Its when the unexpected happens

Its when the unexpected accident happens. Inevitably I get stressed and this feeling lasts for a couple of hours. When I am feeling fragile it does not take much to tip me over the edge. Most of the time I’m as tough as old boots. Its when the unexpected happens The problem is the MS. My memory and sense […]

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A long journey called multiple sclerosis

A long journey called multiple sclerosis

It all started in 1972 I was almost 18. One day I was in my parent’s antiques shop when two young dealers visited. They offered to take me out for a drink. After a pint I was desperate to go to the loo. I excused myself and went to the gents but then I could […]

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MS Society MSLIFE2016 Exhibition

MS Society MSLIFE2016 Exhibition

Over the weekend 17/18 September the MS Society held its biennial exhibition, The MS Society MSLIFE2016 Exhibition MS Society MSLIFE2016 Exhibition I went there on the first day and arrived at about 12.30. There was expectation and excitement from the moment I walked into the exhibition as well as a noisy atmosphere. During the day I […]

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Do my morning exercises

Do my morning exercises

As little as ten years ago I would wake up and get out of bed without a thought. Such bliss, such joy. Now when I wake up I always feel horribly stiff. It’s a huge effort to turn over onto my back so I can swing my legs out of bed and sit on the […]

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An invisible physical disability

An invisible physical disability

Are you like me? I suffer from an invisible physical disability. Do these statements sound familiar? “Crikey I didn’t know you were disabled”.  Or maybe someone said “You don’t look disabled”. Sometimes it’s even “You look healthy”, and then they deserve a slap. An invisible physical disability Millions of us in Briton have a hidden disability. […]

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My Badly Behaved Bladder

My Badly Behaved Bladder

Sometimes you just want your MS problems to go away. I know the severity is different for everyone but there are times when the niggles just get to be too much.  My badly behaved bladder has been around for over 35 years. Slightly longer than I have been married. My badly behaved bladder Its not […]

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Some things I simply do not see 

Some things I simply do not see 

Vision is a bit of a mystery to me at times. Some things I can see perfectly well and some things I simply do not see. I know my vision is not 20/20 🙁 I always have to wear a pair of  glasses, I even have special reading glasses. Some things I simply do not […]

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I cannot do things I once took for granted

I cannot do things I once took for granted

Everyone knows Multiple sclerosis is a horrible disease. Now I cannot do things I once took for granted, its the Multiple Sclerosis. Its taken a long time but I thinks it has finally got me. I get so frustrated. I cannot do things I once took for granted Am I wrong? I don’t think so. […]

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Visit The Shoulder Consultant Again

Visit The Shoulder Consultant Again

I had an operation to repair the rotator cuff in my left shoulder in August 2014. There is still an occasional twinge in my left shoulder.  Shortly after the operation, the consultant said he could do a hip replacement in less time than it took to repair my shoulder. Only then did I realise it […]

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Something prevents a good sleep

Something prevents a good sleep

It all started in the middle of last year, 2015, I had an appointment to see a urology consultant. I was having problems with leaking urine before I inserted a catheter to have a pee. Only very very occasionally was there a total disaster. Accidents do happen and very occasionally I have to change my […]

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Heads MS Wins or Tails I Lose

Heads MS Wins or Tails I Lose

Heads MS wins or tails I lose. Its all on the toss of a coin? Life is unfair. Running, driving, dog walking, employment are just a few things my friend MS has won from me. It is exerting such a strong grip on my life. Nowadays I run out of energy more quickly than ever 🙁 […]

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Award in Education and Training

Award in Education and Training

I am doing a Level 3 Award in Education and Training. People with physical disabilities must have a better quality of life. The number of disabled people is growing. Able bodied people must learn to accept them into their lives. Disabled people need to make adjustments to their behaviour. Only little changes need to be […]

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The Highwayman in Berkhamsted

The Highwayman in Berkhamsted

The Highwayman in Berkhamsted used to be a Blanc Brasserie restaurant, it catered for people who use a wheelchair admirably. There was a good disabled loo at pavement level. The dining area is over half a dozen steps lower than the entrance but there was a lift for wheelchair users to get to the dining […]

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Swimming is proper exercise

Swimming is proper exercise

At hydrotherapy I had unexpectedly found myself swimming doggy paddle. Suddenly I realise swimming is proper exercise. There is no fear of falling over. It uses so many muscles. It is healthy exercise and no fear of falling over, call it a water workout. Feeling exhilarated by the thought of swimming a few strokes I […]

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Repairing my rotator cuff

Repairing my rotator cuff

Repairing my rotator cuff was my operation in August 2014. Its now December 2015, that was more than 15 months ago. My shoulder now has a full range of movement but no strength when lifting my arm up to the horizontal position. I assumed this would to be my misfortune for the rest of my […]

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So very different now

So very different now

Taking exercise is very different these days. My old life Exercise such as dog walks, running for the bus or going up the stairs two at a time are history; now only a distant memory. The changes to my body did not happen overnight. It all started in the year 2000, several years after my […]

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A Short Video – Me and My SPMS

A Short Video – Me and My SPMS

Below is a short video of me taken recently after a networking meeting. To watch the video click on the picture     I know full well that after a diagnosis of MS you may well feel shell shocked, devastated, depressed or even as if the world around you has collapsed. Despite the diagnosis MS […]

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Good Days and Bad Days

Good Days and Bad Days

Its only started over the last few days. It’s a return to the old times of good days and bad days. What’s happened? I am still just as busy. I am still doing things that I enjoy. Some of the things I do even earn me a bit if money. One small thing has changed […]

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Reunited With My Scooter

Reunited With My Scooter

Man is reunited with his lifeline scooter A father has credited the power of social media with helping to reunite him with his ‘lifeline’ mobility scooter after it was was snatched by thieves. Patrick Burke’s three-wheeled scooter vanished from outside Berkhamsted’s Quaker House last Tuesday evening (9 June 2015) – but thanks to his daughter […]

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A Very Wet Phone

A Very Wet Phone

Does your mobile phone float? Mine fell into the loo; it sank then I had a very wet phone. Let’s start at the beginning I’m a bloke and I keep my phone in the breast pocket of my shirt. If I bend over at the waist I will fall over unless I am holding onto something; […]

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Safe Return Of My Travelscoot

Safe Return Of My Travelscoot

I am a member of Berkhamsted Speakers club, it meets on Tuesday evenings; I go to the meetings using my Travelscoot. After the the meeting had finished on Tuesday 9th June I went outside to ride it home but my Travelscoot was nowhere to be seen. It had disappeared. I looked again and it still […]

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Its taken a long time to get going again

Its taken a long time to get going again

It’s took me a long time, a whole week to get going again after a short holiday. Here’s why. First excuse is Portugal Barby and I went to stay with University friends of mine. They have a house in the mountains near Monchique, Portugal behind the Algarve coast. Here are some of the memories: Freshly […]

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Glasses for Double Vision

Glasses for Double Vision

It was double vision that led to my diagnosis of MS in 1994. Twenty years later double vision was turning into a serious problem. When the double vision became a permanent fixture, about 2003, the optician could eliminate the problem by adding prisms to my prescription. Sometime in 2014 reading with both eyes open was […]

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Feeling Frustrated, Lost my Temper

Feeling Frustrated, Lost my Temper

MS is a personal disease, different for everyone. No matter how much you try to explain only an MSer can truly appreciate it. There are subtle changes to the mental state of mind. Claustrophobia, clumsiness, feeling frustrated and even stupidity can occur. The physical situation will invariably deteriorate during the day. Sometimes it all gets […]

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Caffeine is the worlds most widely consumed drug

Caffeine is the worlds most widely consumed drug

Caffeine is the world’s most widely consumed drug. It changes brain function and results in alterations in perception, mood or consciousness. Unlike many other psychoactive substances it is legal. If you have MS and an unreliable bladder then caffeine is definitely bad news. Now I have to go to the loo frequently and wear a pad. This is so […]

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