Queen Sq

I attempt a stupid walking challenge, only 100 Km

I attempt a stupid walking challenge, only 100 Km

Earlier this year I tried a stupid walking challenge, only a mere 100 Km over 10 months. I have used an FES for over six years, it  helps my walking. A year ago I completed a one hour walk. At the end I was exhausted but it was deeply satisfying especially as I raised over […]

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The urgent search for hope by Patrick Burke

The urgent search for hope by Patrick Burke

I always enjoy unexpected surprises. One started in early November. I was having my 18-month check-up for the MS-Stat2 drug trial with simvastatin. It’s always a pleasure going down to the MS centre at Queens Square, the staff are really friendly. Also there is an urgent search for hope for people with MS. The end […]

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Negotiations with the NHS after a UTI

Negotiations with the NHS after a UTI

Within 3 hours of arriving in Seville on 14 Feb I was in a hospital because of a UTI, a nasty bacterial infection. An indwelling catheter was inserted into my bladder; a 6 inch piece of rubber tubing hanging off the end of my willy, it was no fun. A simple rubber bung jammed into […]

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Can the elephant stay out of the room

Can the elephant stay out of the room

In February 2017 I wrote a blog about getting Botox injections for my bladder. Looking back it makes an enormous difference to my life. It changed, totally changed. Suddenly I did not have to worry about finding the loo or embarrassing myself. It was as if an enormous elephant had left the room. Describe it […]

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