2026
Smouldering MS, further news
Smouldering MS is defined as a gradual worsening of MS disabilities without relapses or new lesions showing on an MRI. An MS expert would describe this as PIRA (Progression Independent of Relapse Activity) ie no relapses. It gained significant recognition as the “real MS” in 2021 – 2022 highlighting it as the primary, often silent, […]
Easy Grip Cutlery
Easy Grip cutlery gives me dignity and independence at mealtimes. I have advanced MS and cannot use traditional cutlery. So many knives and forks have thin handles which I find very difficult to hold and manipulate. Transferring food from plate to mouth was a game of chance. Using traditional cutlery was definitely too embarrassing for […]
Manual wheelchair really does help me
A manual wheelchair can be a life-changing tool for managing limited mobility. Mine also helps me in a way I did not expect. I never thought a big advantage would be making my core muscles significantly stronger. I had assumed it would just be to stop me falling over and getting around more quickly and […]
Clever Bear mattress lifter
The Clever Bear mattress lifter is very useful. It lifts the corner of a mattress over 17 cm above the bed frame so changing a bed sheet is so much easier and simpler. If lifting up the corner of a mattress is difficult then you need to use this easy-to-use tool. Now bed making will […]
My Quickie Wheelchair
I bought a lightweight Quickie manual wheelchair in 2009 ‘cos of MS and foot drop. Me and Barby were going to St Petersburg for a week’s holiday and I knew that there was going to be too much walking for me. We were also aware that I would probably need to use one sometime in […]
MuSmate a walking aid for foot drop
I have had foot drop in my left leg since 2005. When the problem started to be an issue I discovered the MuSmate as a walking aid for foot drop. It stopped me dragging my toes along the ground and tripping me up. Without the mechanical elastic device called a MuSmate I could fall over […]
