Diagnosis

Multiple sclerosis is a vile disease

Multiple sclerosis is a vile disease

MS smothers you, wraps you up in its tentacles and replaces energy with fatigue. I can no longer do things that other people take completely for granted. Even worse there is nothing predictable about it except it just gets worse and worse and worse. It can even lurk in the body for years before its […]

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It all began 38 years ago in 1981

It all began 38 years ago in 1981

I was 19 and I started to experience numbness and pins and needles in my fingertips. It all began 38 years ago in 1981. The doctors suspected a trapped nerve in my shoulder, because I carry a heavy portfolio at work. I was an artist’s agent working in advertising for a leading creative agency company […]

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My long journey with multiple sclerosis

My long journey with multiple sclerosis

This is the story of 45 years of my life living with multiple sclerosis as we both grew up. I did not piece the whole story together until I took medical retirement in 2012. My long journey with multiple sclerosis. My long journey with multiple sclerosis It all started in 1972 and I was almost […]

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Ways to Help Cope with an MS Diagnosis

Ways to Help Cope with an MS Diagnosis

A guest post from Dizzy and the Dinosaurs. You can visit the blog at dinosaursdonkeysandms.com Ways to Help Cope with an MS Diagnosis It was nearly four years ago that I was diagnosed with MS. And for me it was rather a shock. Before I started acquiring my weird collection of symptoms (have buzzy feet, seeing […]

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Will the lumbar puncture hurt?

Will the lumbar puncture hurt?

I have now had four lumbar punctures. A small sample of fluid is taken from the spinal cord to measure the activity of multiple sclerosis. Think lumbar puncture and my hair stands on end. The idea of a syringe going into my spine and thinking ‘will the lumbar puncture hurt?’ are two concepts I don’t like […]

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Who am I

Who am I

I am Patrick and run this website and I was born in 1954. These days I have advanced multiple sclerosis; I try to lead as active a life as possible but balance and walking problems get in the way. Also I am not allowed to drive because of double vision, another kind gift from multiple […]

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Life before diagnosis of multiple sclerosis

Life before diagnosis of multiple sclerosis

I was diagnosed with multiple sclerosis in 1995 but my journey started much earlier. In 1972 when I was nearly 18 I was in the pub having some beers with a couple of friends. Suddenly I had the urge to go to the loo but when I went nothing happened. I didn’t think anything of […]

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Totally unrestricted and able to move easily

Totally unrestricted and able to move easily

There was a wonderful time when I had felt totally unrestricted and able to move easily. Even on the fateful day in 1995 when the consultant diagnosed me with multiple sclerosis I was just a normal guy. Multiple sclerosis, I had never heard of it. I had to look it up in an encyclopaedia and […]

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Imagine life without multiple sclerosis

Imagine life without multiple sclerosis

Sometimes I like to play a simple mental game. Picture myself going up a flight of stairs. Maybe I can see myself walking to the shops and then carry the shopping back home. Drive the car instead of using the bus. I can still visualize myself striding out for a walk with the dog, not […]

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Why multiple sclerosis makes me anxious

Why multiple sclerosis makes me anxious

Multiple sclerosis is a scary disease. It’s progressive and unpredictable.  As it progresses you become less capable of undertaking physical activities. You are very aware of its progress. It is no great surprise that sufferers are apprehensive of what the future holds for them. This uncertainty is often the cause of stress and anxiety. Why […]

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Diagnosis, what next?

Diagnosis, what next?

You have been diagnosed with Relapsing Remitting Multiple Sclerosis (RRMS), this happened to me in 1995. How many of you have been offered a disease modifying therapy (DMT) and when were you diagnosed? You try disguising a fall When I was diagnosed with MS I was not offered any treatment because none was available. I […]

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You’ve Been Diagnosed with Multiple Sclerosis

You’ve Been Diagnosed with Multiple Sclerosis

 ‘You’ve been diagnosed with multiple sclerosis’ Six words you do not want to hear. Did not tick the box on the mortgage application form for life cover, I didn’t. Its too late now to insure your health, so you’ve just got to shrug your shoulders. Its even more important to plan for the future. Yup, […]

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Multiple sclerosis is not a death sentence

Multiple sclerosis is not a death sentence

Newly diagnosed with MS? For many people receiving a diagnosis is a mixed blessing. Now you have an explanation for those odd things that have been happening to you. You also have an incurable disease that is going to get progressively worse. Do not let MS stop you doing what you enjoy. Slowly your symptoms […]

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