A UTI with advanced multiple sclerosis is no fun

It crept up on me very slowly, just think of a lion stalking its prey. Initially, I was blissfully unaware that I had an infection. Looking back with the benefit of hindsight I can see how I slowly deteriorated followed by a slow recovery. A urinary tract infection or UTI with advanced multiple sclerosis is no laughing matter.

A UTI can often make MS symptoms so much worse. It may even trigger an MS relapse and possibly worse if left untreated. It is so easy to check if you have a UTI, call your GP.

Initial symptoms

It all started with me going to the loo in the night to have a pee but was my bladder showing its age? Recently I had had four UTIs and was on a course of low-dose trimethoprim to prevent further infection. So you can see why a UTI did not appear on my radar screen.

Sometimes when I had a pee in the wee hours of the morning my urine possibly looked slightly cloudy, a tale-tale sign of a UTI, but I wasn’t sure. I always had a good drink of water before getting back into bed and everything was OK in the morning when I got up.

Waking up in the night for a pee was a matter of urgency. No messing around. out of bed and into the loo. Now do the business, insert a catheter then relief. Finally back to bed and try to fall asleep except by now I was wide awake.

I found a secret stash of trimethoprim, phew problem sorted. Thirty six hours later I knew it was a UTI, 4 pees in 2 hours and a stinging sensation were the give away signals but it was Friday evening. The GP surgery was closed until Monday 🙁

First thing Monday morning

I rang the GP surgery and two hours later a prescription for Nitrofurntoin was waiting for me in my pharmacy. My GP said that Trimethoprim was not good at clearing up a UTI. The new antibiotic was effective within hours

The doctor was right

Within 24 hours the cloudiness in my urine had disappeared. Over the next week I realised how many other parts of my life were affected. It was the insidious how the UTI had slowly made my MS worse in different ways. Walking, balance and my whole quality of life adversley affected me.

Within a couple of nights

Now I was not waking up in the night to have a pee. My balance and walking improved. I’d never noticed it was getting worse. That sounds strange but its easy to ignore a slight deterioration but any improvement is noticed straight away.

My quality of life went down hill as the infection developed but I was in denial.  The new antibiotic was effective straight way but it took my body much longer than expected to return to its MS affected normal. Also remember to drink at least a couple of pints of water each day.

I have decided a UTI with SPMS is no fun. If in doubt get a urine sample checked.

Incidentally if the GP prescribes Trimethoprim to treat a UTI ask them for Nitrofurntoin instead.

Associated articles

Story of a urinary tract infectionStory of a Urinary Tract Infection (UTI)






Negotiation with the NHS after a UTINegotiations with the NHS after a UTI







February 2022

3 responses to “A UTI with advanced multiple sclerosis is no fun”

  1. Patrick Burke says:

    I do quite a lot on Twitter and this is part of a conversation I had with some one.

    It took over a month for me to recover from last one. GP thought antibiotics weren’t working-tried 3. Ended up in A&E as UTI triggered non stop bladder spasms for 4 weeks. Sent home without anti spasm meds so self medicated with #cannabis

  2. denise vanieris says:

    Very helpful ,taken note.
    Get well soon .

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.