MS Quality of Life
I believe people who enjoy themselves, keep themselves busy have a better quality of life. MS can open up a big abyss and that ingredient that can help to maintain the quality of life can go missing.
Quality of life is important. Its almost a case of use it or lose it
Creating my own social capital
Social capital is happening all the time around us. Reading this blog is social capital. Just being with other people gives you social capital. I expect you’ve already gone to Google and typed in those two words, billions of hits. Now I am creating my own social capital. Creating my own social capital I won’t […]
Totally unrestricted and able to move easily
There was a wonderful time when I had felt totally unrestricted and able to move easily. Even on the fateful day in 1995 when the consultant diagnosed me with multiple sclerosis I was just a normal guy. Multiple sclerosis, I had never heard of it. I had to look it up in an encyclopaedia and […]
A Letter to Multiple Sclerosis
A Letter to Multiple Sclerosis You first visited me a long time ago. It was 1972, I was 18 and having a pint or two of beer. I went to the loo for a pee but nothing happened. In 1979 I had a serious bladder spasm and I wet myself at work. You went away […]
Information you need to know
I am going to tell you information that I think is important. One is about your consultant and the other refers to multiple sclerosis and the two are linked. This is information that my consultant Professor Giovannoni talks about in his blog and I feel it is vitally important that other people know this. It’s […]
Hyperbaric Oxygen Therapy
What is hyperbaric oxygen (HBO) therapy? It is treatment when a patient breathes in pure oxygen while under increased air pressure. This increases the oxygen content in the blood and consequently in different body tissues. Medical conditions such as burns, decompression sickness or the bends, severe infections, radiation-induced tissue injury, and carbon monoxide poisoning can use […]
Disabled Toilet Radar Key
I travel up to London via Euston Station quite often, when I get there I often need to go to the loo or else I might get ‘caught short’. A Radar Toilet Key is needed to get into the disabled toilets. It is time get a disabled toilet radar key. Used to go to the public loos […]
You’ve Been Diagnosed with Multiple Sclerosis
Here are six words you do not want to hear. Did you tick the box on the mortgage application form for life cover? I didn’t. Its too late now to insure your health, so you’ve just got to shrug your shoulders. Its even more important to plan for the future. Yup, the phrase, ‘You’ve been […]
Manage Your Life and Depression
It’s not an easy task to manage your life and depression. It’s even worse if you have a progressive illness. Your life and your capabilities are being nibbled away bit by bit. It is no wonder that you feel sad and dejected maybe even rejected. Depression is curable Oh yes these are strong words but […]
Always Be Able To Ask For Help
With my MS one thing that is essential. I am always able to ask for help. I run out of steam Only too often I used to start a job such as cooking supper or mowing the lawn and half way through I would find I had run out of energy. I needed some else […]
Multiple sclerosis and stress
Multiple sclerosis and stress, a bit like night following day Stress, a definition We think the demands being placed on us exceed our ability to cope. MS and stress If you have MS then stress is likely to be a constant companion. Its usually just hovering out of sight and gets you just when your […]
Pace your life
If you have multiple sclerosis then you must learn to pace your life. What does this mean? Initial ideas Be calm and be steady Learn to relax Always think before saying ‘Yes, I will be there” or “Yes, I will do …” Never be frightened to say “No, I’m too busy” or “OK, but lets […]
Always use the right tool for the job
It is vital that you always use right tool for the job. In my case I must find aids that help to keep me safe. The first thing to do, unless you have done it already, work out what causes you the biggest problem. Now concentrate on how to find solutions to the problem. Accidents […]
Plan B
Plan A & Plan B I nearly always plan out what I’m going to do, that’s plan A, then occasionally I think about plan B. Plan A & Plan B What to do in an emergency, its obvious but surprising how often I forget about it. I get halfway through the day, sit down and […]
Managing Day to Day Life With Multiple Sclerosis
Managing day to day life with multiple sclerosis is a roller coaster ride. One day you feel fine, the next you feel like a wrinkled balloon. Sometmes its a mental issue other times its a physical problem. Sometimes its both. I have passed the Relapse Remission stage of multiple sclerosis. For me its evolved into Secondary […]
Independence and Quality of Life
I suffer from a progressive disease, I have less stamina now than 6 months ago, everything calls for a greater effort and it will only get worse. A couple of questions Do you think your disease is robbing you of your independence and taking away your quality of life? What steps are you taking to […]
Christmas comes early for Julie Dean and family
Christmas is a special time for many of us but for Julie Dean and family from Longwick this year’s will be a particularly happy and memorable one. Having been refused funding from their local council and giving up all hope of ever affording a much needed stairlift, Hertfordshire based company EMS Stairlifts came to their aid providing one completely free of charge […]
80 year old Shropshire farmer continues to run his farm
Robert Mund is 80, determined to run his farm, and his mobility is restricted because of two hip replacements. He relies on a rugged mobility scooter to manage his herd of 40 cattle. I hope that I can be equally active when I am 80. Robert Maund, 80, from Betton Strange near Shrewsbury, Shropshire, is […]
