2020

Managing MS fatigue, an overwhelming inability to continue

Managing MS fatigue, an overwhelming inability to continue

Managing MS fatigue is a long story. As recently as 1995 I played badminton singles in the local sports centre, after just half an hour I was physically exhausted and very sweaty. I’ve now hung up my badminton racket, personally I blame multiple sclerosis,. I still suffer intense exhaustion but no sweating. Walking very slowly […]

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The day I walk for one hour

The day I walk for one hour

Its a wonderful September day. Warm enough to wear shorts but not so hot to become a shade seeking missile. Three months of preparation and I had one hour to prove that I could do it. Yup, Sunday 13th September was the day when I was going to walk for one hour and you had […]

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I’m planning a sponsored walk #Walk4onehour

I’m planning a sponsored walk #Walk4onehour

Lockdown and my world is changing. Still no one knows anything about the future. I knew I had to get out of the house and take some exercise to maintain my mental health plus I needed a goal. A sponsored walk. Perhaps I could organise it and do it, this would tick so many boxes. […]

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MS Botox bladder injections are life changing

MS Botox bladder injections are life changing

There are very few things that really improve the quality of my MS addled life. A few days ago I had MS Botox bladder injections for my squiffy bladder. An elephant left the room within 24 hours. Now I can casually stroll past a loo without thinking “Golly I must go in and have a […]

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I will always love my Travelscoot mobility scooter

I will always love my Travelscoot mobility scooter

I have owned a Travelscoot mobility scooter for ten years and it is still fun to ride. I have not seen another mobility scooter that is as versatile or manoeuvrable. As I cruise along the pavement, I see pedestrians eyeing up my scooter and they always look envious. Even after 10 years I still love […]

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8 comments

Topro Troja Rollator

Topro Troja Rollator

The Topro Troja Rollator is a robust and reliable 4 wheeled walker. It is recommended to many multiple sclerosis sufferers who do not find walking easy and have poor balance. I have advanced MS and suffer from both these problems. I love this rollator because it is well designed, light as well as robust. Also […]

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Now I have twitchy legs at night

Now I have twitchy legs at night

There are hidden joys of multiple sclerosis. Its one long story of new challenges and survival. My latest problem, twitchy legs, only surfaced recently. It’s an uncontrollable twitch, starting in a muscle but culminating with my leg definitely twitching and repeats itself again and again. For some reason the fun only starts after the sun […]

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Patrick has found an important challenge to overcome

Patrick has found an important challenge to overcome

I need a challenge to overcome in my life. Lockdown has been a double-edged weapon for me. Watching the garden grow and evolve over the last three or four months has given me enormous pleasure. This garden project will last for the rest of the year. Finding the energy to take exercise was the problem. […]

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I am Patrick and I have advanced multiple sclerosis

I am Patrick and I have advanced multiple sclerosis

I am Patrick and I have advanced multiple sclerosis; A physically active life is no longer possible, balance and walking problems get in the way. Also I am not allowed to drive because of double vision, another kind gift from multiple sclerosis (MS). The beginning I am convinced my multiple sclerosis started in 1972, my […]

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Blogger’s block or possibly bored with lock down

Blogger’s block or possibly bored with lock down

20-June 2020 It’s been over 3 months since we were all catapulted onto a different planet. My day-to-day existence rules change every day. You as well? Subtle changes every day. Surely me, a person disabled by multiple sclerosis, should have no problem finding topics to write on and post them on my website. Nope its […]

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My exercise routine at home that ticks a lot of boxes

My exercise routine at home that ticks a lot of boxes

7 June 2020 I am proud of myself. Bit of an arrogant statement but what the hell. Every day always starts with a quick burst of aerobic activity. Enough to get my heart beating faster. Remember I’m badly disabled by multiple sclerosis, I cannot walk unaided. Is this exercise routine at home good for me? […]

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Our garden creates positive moments for us

Our garden creates positive moments for us

28 May 2020. Every cloud has a silver lining. Our garden creates positive moments for us. Since early March there has been an enormous cloud hanging over this country. This cloud forced our little niche business to close. The Wife is responsible for looking after up to half a dozen dogs each day while the […]

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I enjoy a spontaneous event during the lock down

I enjoy a spontaneous event during the lock down

23 May 2019 I enjoy a spontaneous event. Something completely unplanned and it must make me feel happy  During the lock down caused by Covid19 pandemic so many of these little life-events have stopped. I really was pleased to see the back of a few but there so many that I really miss. I love […]

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4 comments

Now it is the boredom since lock down started

Now it is the boredom since lock down started

11/05/2020 Its now over 7 weeks since the Covid19 lock down started, boredom is definitely hovering on the perimeters of my life. Retaining focus and motivation are getting harder. Over the years me and The Wife have developed a good coping strategy and mutual understanding but these are unusual times. We are both stressed and […]

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Enjoying our garden during the lock-down

Enjoying our garden during the lock-down

24 April 2020 Well, isn’t the weather glorious, but it looks like some rain is due any day. I’m enjoying our garden during the lock-down. In this time of chaos l am able to quietly watch it evolve. More by good luck than design there is always at least one plant flowering in the garden […]

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I must ensure exercises become a routine activity

I must ensure exercises become a routine activity

18 April 2020. The coronavirus lock down started at the end of March. Our lives were then thrown into chaos. Everyone had to find a new routine, a new rhythm and this includes me. I made a simple promise to myself. I need to take more exercise and I must ensure the exercises become a […]

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Adapt my MS normal to Covid 19 isolation normal

Adapt my MS normal to Covid 19 isolation normal

9 April 2020. Right now the chips are down. I need to find a new life that includes Covid 19 isolation. I must not allow depression or anxiety to intrude or overwhelm life. We all need to come up with a new strategy or routine. I must change my MS normal to Covid 19 isolation. […]

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An MS crisis with my dysfunctional bladder

An MS crisis with my dysfunctional bladder

29 March 2020. This MS crisis started when I was on holiday in Valencia in February 2019. I woke up one morning wanting a pee but I was unable to insert a catheter into my bladder. The unflappable hotel staff directed me and The Wife to hospital where I was diagnosed with a UTI and […]

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Suffering from consequences of panic buying

Suffering from consequences of panic buying

20-March 2020. People are buying huge amounts of essential food and clearing supermarket shelves on a daily basis. I get out of bed at about 8.00. It takes me nearly an hour just to get dressed. Factor in breakfast and 90 minutes of the day is gone. At this stage of the morning some supermarkets […]

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13 comments

Joseph Joseph Chop2pot Folding Chopping Board

Joseph Joseph Chop2pot Folding Chopping Board

Recently someone gave me a Chop2Pot folding chopping board as a present. I use it whenever I am preparing food to cook. The biggest advantage for me is I use it to transfer food from a large and heavy wooden chopping board to the cooking pot. I am clumsy and moving hot pots and pans […]

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Further handicaps because of MS

Further handicaps because of MS

I have a problem with expecting too much from myself. This in turn hurts me more than it helps me. I am always looking at my life and trying to simplify everything I do but it is harder than it seems. The biggest problem with advanced MS is how an ordinary activity is suddenly fraught […]

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Ideal solution to an FES problem

Ideal solution to an FES problem

I must carry my Functional Electrical Stimulator (FES) and it is quite bulky. Yup, I suffer from multiple sclerosis and like so many others I have foot drop. I use a FES to help me with walking but how do I carry it so it is safe, secure and easy to access? A Man’s Sports […]

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Chemistry in the kitchen

Chemistry in the kitchen

Cooking food is simple and easy for me plus everyone enjoys food cooked by somebody else. I have also rediscovered baking, just four or five basic ingredients and you create a cake. Incidentally I love raw cake mixture, but the cooked product is sooo much better. It was after a recent cake disaster that I […]

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HANDYSCOOT™ Lightweight travel mobility scooter

HANDYSCOOT™  Lightweight travel mobility scooter

Have you ever thought of buying a HandyScoot™ lightweight travel mobility scooter? Perhaps you are recovering from a medical procedure or maybe you just need help getting around because your walking is not so good these days.  Not all mobility scooters are the same. The purchase of any lightweight travel mobility scooter is a significant […]

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7 comments

Disabled and can’t walk unaided, welcome to my world

Disabled and can’t walk unaided, welcome to my world

The pernicious creature multiple sclerosis affects me more and more as time goes by. I do have two legs but one of them is virtually useless. My brain cannot send messages to all the muscles in my left leg. Also, my left leg does not tell my brain everything that it has done. Messages cannot […]

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Discounted theatre tickets for disabled people

Discounted theatre tickets for disabled people

Almost every British theatre offers discounted tickets for disabled people. Basically the carer gets in for free. I have seen excellent productions as well as extremely good actors via this scheme. This opportunity of discounted tickets for disabled people is available all  over the UK. If you can show that you are disabled then your […]

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My last ten years with multiple sclerosis

My last ten years with multiple sclerosis

In the last last ten years I have changed from a man in full-time employment to a man with very visible, full-on, multiple sclerosis. Until 2011 my multiple sclerosis was affecting me physically but my thinking and problem-solving skills were still good. Employment was always somewhere in Europe as a contract computer analyst programmer or […]

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