Can the elephant stay out of the room
In February 2017 I wrote a blog about getting Botox injections for my bladder. Looking back it makes an enormous difference to my life. It changed, totally changed. Suddenly I did not have to worry about finding the loo or embarrassing myself. It was as if an enormous elephant had left the room.
Describe it if you can
The feeling when your bladder suddenly says ‘empty me’ cannot be put into words very easily. Imagine when something is going to happen but is there no way to stop the inevitable. It’s a car crash, total helplessness.
You soon get used to it
It didn’t take long for me to get used to the freedom. Within two weeks the fear of an accident was history. Luckily I had the sense to ask them how long the Botox would be effective.
‘Oh about 8 to 10 months’ they said. ‘You will know when it stops being effective. Just give us a ring and we will put you on the waiting list for some more Botox’. It all sounded so simple.
Here we go again
At the end of October I started waking up at about five in the morning needing to have a wee. When this went on for three consecutive days I knew something had changed. I could still only go to the loo by doing Intermittent Self Catheterisation. By the time I had got out of bed catheterised and got back into bed I was wide awake 🙁 .
Stroke of luck
At night I take Tizanadine for spasms in my legs. One of the side-effects it that it makes me feel drowsy but it is not addictive (I hope). So if I was feeling a bit sleep deprived at five in the morning I take one or two of these pills. Problem solved. Meanwhile October soon became November and then December and I still did not have a date for some more Botox.
Can the elephant stay out of the room?
December 2017, its was almost 11 months since my Botox injections. I was in Queen square so I thought I would check things out with the uro neurology department at the National Hospital for Neurology and Neurosurgery. I had not heard anything at all since contacting them at the end of October. Had my request slipped off the radar screen or had a letter been lost in the post? I was definitely a bit concerned.
I spoke to the nurse
‘Whereabouts am I on the list?’ I asked her.
‘You are number 33’ the nurse said. ‘We will be in touch with you when you get near the top’.
Number 33 on the list. I had phoned them up two months before. I really had not expected there to be that long a list or that long to wait.
Almost a year since my Botox injection
Things are still okay. No accidents or embarrassments yet. I still wake up most mornings at about 5 to have a tiny pee. I have just got to hang on in. None the less I do ask myself, ‘Can the elephant stay out of the room?’.