What has happened to my energy?

What happened to my energy?

Energy gone from the leaf

What has happened to my energy? Back in the day, I had so much get up and go. I had a 9 – 5 job, 3 young children, a garden to look after and numerous other responsibilities. From about 2005 the wheels began to come off the car. I gradually had less energy to fit everything into each day. This was the start of fatigue.

I’m not alone

Almost everyone with advanced MS will arrive at a tipping point, Suddenly the ability to get up and do something exceeds the pleasure derived from doing it. Poor balance doing things in the garden is an example. I’m now banned from pruning the roses. Gardening must now be done sitting down.

If I do need to stand up for a while I keep my balance by holding onto something solid. Recently I tried freelance standing but suddenly a plant pot turned into a makeshift seat. The plants survived but my dignity took a hit. Watering is done sitting on my mobility scooter with a hose. These days doing too much of anything in the garden is a no-no, I just get exhausted.

The mornings

When I was younger the mornings were the best part of the day. Dog walks, going to the market and even seeing the sunrise. Nowadays life is different. Allow forty minutes to get washed and dressed. Now add fifteen minutes to do some simple exercises. Downstairs I am now slumped at the kitchen table, zonked,  staring at tea and a bowl of muesli. Its only nine o’clock, I am washed out with the whole day ahead of me. This is fatigue.

Good days, bad days

Some days are definitely better than others. If there is no list of jobs-to-do then the day could drift away from me. Yup some days I must go out and be a service user. Other days its up to London by train for a medical appointment. When I roll back into the house it takes me at least half an hour to move off from the seat I collapsed into. More dreaded fatigue but I must not moan. Others get it much worse than me.

On the other hand

Lack of energy or fatigue is a hidden disability. There is no yellow sticker saying “Warning person with fatigue”. This enormous problem does not entitle anyone to disability benefits and possibly not even a Blue Badge parking permit. At times life is unfair.

What has happened to my energy?

Age steals energy, but the rate of loss has suddenly accelerated with advanced MS. Keeping two thoughts in my mind at the same time does not happen. There are other things that have happened as well. My world is smaller, I have fewer friends and my power of concentration is not what it was.

There is no charger for me to plug into. The only solution is to live life at snail’s pace. I take extra naps and spend more time in bed, I don’t look back to those younger carefree days, they were great fun. Now its fatigue with my MS life.

Associated articles

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Multiple sclerosis is a vile disease






May 2022

6 responses to “What has happened to my energy?”

  1. Isla Burton says:

    It took me until recently to understand that ‘fatigue’ isn’t ‘feeling tired’ – it’s knowing that you won’t have the energy to make it from a to b, or to complete x task. It’s a bitch. Let’s all concentrate on the good (better?!) days 😀

    • Hello Isla,

      Sometimes I am so knackered even at 9 in the morning that I don’t have the energy to do anything else for anything up to an hour. Getting dressed was the culprit.

      This problem call it ‘fatigue’ or ‘feeling tired’ or ‘exhaustion’ makes my world smaller and that is the real problem. Its a huge hidden disability and perhaps it is wrong to describe it as feeling tired but people can relate to that

  2. Bernard Gorman says:

    I can fully relate to everything you’ve said in this article.

  3. Ian Cook says:

    you have all my sympathy. I incresasingy feel the same way as you.

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