My own cannabis experiment

The cannabis experiment

Medical Cannabis contains THC & CBD

I’ve had MS since 1972 and it has had a huge impact on life. It now affects me in every which way.  The wonderful NHS prescribes drugs that will ease my symptoms so every day I have to take a cocktail of pills. Time to look at other solutions. I decided to do my own cannabis experiment.

Why?

Over the last ten years the pain, twitches and restlessness in both my legs has steadily increased. Symptom relief drugs are now an essential part of my life but they are not always effective. Apparently medical cannabis helps to reduce some MS problems and does not make me feel stoned or get the munchies. Should I find out if it will help?

Time to go for it

I made an appointment at a medical cannabis clinic and the doctor wanted to know if I suffered any pain and muscular problems. When I described my symptoms and added that I had multiple sclerosis there was not a problem problem. After a couple of weeks a bottle of cannabis liquid arrived. A 50 ml bottle cost me £175 so it had better be effective. Everything was done privately

Over a four week period the dosage increased from 0.1 ml twice a day to 0.4 ml twice a day. I have been on this amount for two or three weeks. Instructions are never take more than 1.4ml a day.

Cannabis experiment

Cannabis has improved my life in so may ways. To my knowledge there is no one drug that is as effective in so many ways. I am also steadily reducing the symptom management drugs.

Sleeping better

I used to wake up most nights to go to the loo. Quite a performance because I catheterise  and must use a walker. I’m now sleeping through the night and my sleep quality has improved. I wake up feeling rested and in the evening I fall sleep much more easily.

My bowels and bladder

Both are a constant worry and I live in fear an accident. I won’t go into any details except to say that life has now become a whole lot more manageable. People who experience problems with pee and poo will know exactly what I’m talking about and understand how disabling it is when events catch you out. This elephant has definitely shrunk.

Pain and stiffness

My legs and feet have hurt for years and didn’t think of it as an MS problem. Well the constant pain has disappeared but the problems connected with my balance and walking are still there in trumps. Walking might not be so painful but I’m still a frequent faller

Symptom management drugs

I take 3 prescription drugs, clonazepam, gabapentin and tizanidine.  I want to eliminate clonazepam, it is addictive and I am an addict. It does not help me at the current dosage. Can I cut back on the other two? In six weeks I have halved my intake. If I stop taking cannabis will I need these 3 drugs?

There is no argument

Medical cannabis improves my quality of life. I feel happier, more alert and with a better control of my life. I know it is not as effective for everyone and it does not help to ease my fatigue. Just name another drug that ticks so many boxes to help people with advanced MS. Its no cure but it really helps me. So far my cannabis experiment is a success

Associated articles

 I’m a lucky guy Fampridine works for me

 

 

 

 

 

I am Patrick and I have advanced multiple sclerosis

 

 

 

 

 

August 2022

6 responses to “My own cannabis experiment”

  1. Chris Ogden says:

    Hello Patrick
    We have corresponded by email many times, and we also met years ago in London when you were speaking to a group. In fact, I think you advised me when I was considering getting a TravelScoot.

    Anyhow, I noted in this blog your problems with bladder and bowel. I have “solved” the bladder problem by self-catheterising twice or sometime three times a day. But I also use the Conveen device during the day and also during the night-time and I’d be happy to say more about my experiences with this.

    Bowel problems are more of a worry. I have been working with a group in Cambridge on devices that may help, and know of other places that are finally addressing this problem. Again, I would be happy to share my experiences. Finally, I am trying to start a bowel support group for patients at my local GP and have met with support.

    Good luck with your move.

    • Hello Chris,

      I have self catheterised for several years and now receive botox injections into my bladder so it is always relaxed and never has a spasm. Bladder incontinence is a serious problem for people with MS and medical solutions exacerbate bowel problems, all drugs arct like liquid cement

      I also suffer bowel incontinence and constipation issues. I have moved from Laxido to super strong Senna and other laxatives Basically cannabis makes the MS Elephant in the room much smaller and so my life is easier to deal with. It improves my quality of life in so many other ways as well. no pain and I sleep through the night way.

      I would like to talk to you about your work with a bowel support group. I might be helping with a study for the MS Society into srlf management of bowel issues. No one really wants to talk about poo and piss problems that includes many consultants and patients as well.

  2. Miles says:

    Been thinking of trying this for years now. Although I don’t have ms my stiffness, bladder and pain symptoms are similar to yours.
    Such a shame our government is so blinkered when it comes to the medical use of cannabis. It is very expensive and cheaper to get the illegal sortbut I dont want to be stoned. I may very well give medical cannabis a try to see now and will let you know if it helps. Thanks for the info.

    • Hello Miles,

      I’m sure Weed works out cheaper but it is less predictable. If you do decide to try the prescription route then a 50 ml bottle of medical cannabis costs £150. Contact The Medical cannabis Clinic and ask about project 21, that’s what I’m doing.

  3. ian cook says:

    How do you find a medical cannabis clinic? Do you have a link or phone number?

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