Quality of Life

Have you tried using a Knork?

Have you tried using a Knork?

I have slowly been losing sensation in the fingers of my left hand since late 2017. My writing has deteriorated as fine control has ebbed away, it’s now a childish scrawl. I struggle to unscrew the lids off jars and bottles. Now I am hardly able to twirl spaghetti round a fork. This isn’t right […]

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Methods I use to manage my multiple sclerosis

Methods I use to manage my multiple sclerosis

Multiple sclerosis is a very unpredictable disease and tough to live with. I think we all know that; I certainly do. MS has now been a part of my life since 1972 but I was not diagnosed until 1995. Here some methods I use to manage my advanced multiple sclerosis. Everyone has their own way […]

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Medical retirement 75 months ago

Medical retirement 75 months ago

I took medical retirement in January 2012. That makes it sound like a voluntary decision so let me reword that. Medical retirement grabbed me 75 months ago in January 2012. For me there was no option. 🙁 A permanent holiday It sounds absolutely idyllic. I did not realise what an earth shattering process this was […]

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Invisible disabilities are the hardest

Invisible disabilities are the hardest

Multiple sclerosis comes in all sorts of packages. There is no ‘one size fits all’. When I read the newspaper I look very healthy. As soon as I stand up everyone can see I’m seriously disabled.  This is the flip side of MS, the invisible disabilities are the hardest to understand. Few would realise the […]

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Is physical exercise good for me

Is physical exercise good for me

I believe that exercise is good for me and essential to having a good quality of life even despIte suffering from aDVANCED ms MS. It is an excellent activity to re-connect the mind and body before or after a long day of stress. My MS stops aerobic exercise, getting all hot and sweaty. Even just […]

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Flexible walking stick holder

Flexible walking stick holder

Recently a friend wrote to me talking about this wonderful thing she uses to secure her walking stick onto her mobility scooter. “Foolproof” she said. I thought I would test it out and I did not expect to be so impressed. In every sense of the word this is a flexible walking stick holder. It […]

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Call it advanced multiple sclerosis

Call it advanced multiple sclerosis

Soon I’m going to be 64 so not quite as nimble as I was. Age doesn’t stop me having a social life. I go to the theatre and museums in London. Meet friends in one of the numerous coffee shops in our town. I go to the supermarket, buy the food and then cook dinner. […]

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Creating my own social capital

Creating my own social capital

Social capital is happening all the time around us. Reading this blog is social capital. Just being with other people gives you social capital. I expect you’ve already gone to Google and typed in those two words, billions of hits. Now I am creating my own social capital. Creating my own social capital I won’t […]

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Trabasack Curved Lap Tray and Bag

Trabasack Curved Lap Tray and Bag

Trabasack Curved LapTray and Bag is designed for use on a wheelchair. Its a new concept, beanbag lap tray that you carriy like a bag and use it on your lap whenever you need it. The tray inventor is a wheelchair user who fully understands what is necessary to make it useful. You could say it […]

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I have discovered sitting-down gardening

I have discovered sitting-down gardening

I have had to discover a different way to garden. It is because I am disabled by MS and things had to change. It is now ‘plastic-lined’ boxes type of gardening. No more digging holes with a spade or bending over to pull up weeds. I have discovered sitting-down gardening.  Perhaps it discovered me, who […]

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Your Disability Living Allowance is ending

Your Disability Living Allowance is ending

It was the usual brown envelope from the DWP with a return address of DWP PO Box 535 Belfast. It’s never an expensive white envelope and it’s never by first-class mail. Their letters always arrive on a Saturday morning just like this one, 21 April 2018. I opened it, the message was very simple, Your […]

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MS for over 70 percent of my life

MS for over 70 percent of my life

I am 63, born in 1954. I have lived with Multiple Sclerosis for 45 years, that’s a scary thought. It started in 1972 but I was not diagnosed until 1995. It morphed to secondary progressive or advanced MS in about 2000. I took medical retirement in 2012. I have had MS for over 70 percent of […]

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Twenty injections within six minutes

Twenty injections within six minutes

It was a year to the day since my previous Botox injections. I was back in the in Uro Neurological surgery in Queen square London for a Botox refill. By now the benefits of my previous Botox injections, sometimes known as botulinum toxin-A, had worn off. If the truth of the matter were known my bladder was […]

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My MS clock has gone back a couple of years

My MS clock has gone back a couple of years

I started taking Fampridine just over a couple of weeks ago. Yes, YEs, YES it really has worked. Right now I’m not too sure if my walking speed has increased sufficiently to receive the drug beyond the trial period. That it will be a bummer. Put walking speed to one side then so many other […]

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Getting the best from my life

Getting the best from my life

Enjoying life, it is the reason to get out of bed each morning. Okay I do have a few problems but hey who doesn’t? I’ve had multiple sclerosis for over two thirds of my life and now I’m medically retired. I’m still learning the art of getting the best from my life. The biggest game […]

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Disabled access is not a tick box exercise

Disabled access is not a tick box exercise

Access and facilities for physically disabled people are needed today and why ever not? It would be so unreasonable in this day and age to exclude the physically disabled from our activities. From my experience disabled access is turning into a tick box exercise. Remember disabled access is not a tick box exercise. Disabled access […]

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Capability for Work questionnaire

Capability for Work questionnaire

Every once in a while the postman delivers a letter and I think ‘Uh oh this could be trouble’. On the front of this letter in big black letters I was told ‘IMPORTANT INFORMATION THIS IS NOT A CIRCULAR’ and it was ‘PRIVATE &  CONFIDENTIAL’. The really important clue was the sender, printed on the back […]

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A Simple Decision Every Morning

A Simple Decision Every Morning

There are decisions I must make every day from the moment I wake up. I have to make a simple decision every morning when I get dressed. The result depends upon the mood I am in, how I feel when I wake up. It is my decision and it affects me for the rest of the […]

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A Letter to Multiple Sclerosis

A Letter to Multiple Sclerosis

A Letter to Multiple Sclerosis You first visited me a long time ago. It was 1972, I was 18 and having a pint or two of beer. I went to the loo for a pee but nothing happened. In 1979 I had a serious bladder spasm and I wet myself at work. You went away […]

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Heads MS Wins or Tails I Lose

Heads MS Wins or Tails I Lose

Heads MS wins or tails I lose. Its all on the toss of a coin? Life is unfair. Running, driving, dog walking, employment are just a few things my friend MS has won from me. It is exerting such a strong grip on my life. Nowadays I run out of energy more quickly than ever 🙁 […]

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Award in Education and Training

Award in Education and Training

I am doing a Level 3 Award in Education and Training. People with physical disabilities must have a better quality of life. The number of disabled people is growing. Able bodied people must learn to accept them into their lives. Disabled people need to make adjustments to their behaviour. Only little changes need to be […]

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Non Slip Outdoor Step

Non Slip Outdoor Step

The Non Slip Outdoor Step is is a practical and clever idea. It instantly reduces the height of a step. The non slip outdoor step is ideal for giving you that little bit of added help when tackling large doorsteps. Its allowing you to take two smaller steps rather than struggling with one large step. All […]

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Diagnosed with MS And You Drive A Car

Diagnosed with MS And You Drive A Car

If you are diagnosed with MS (multiple sclerosis) and you drive a car then here is some good news. Most people can continue driving There are one or two hoops that you must now jump through when you get the diagnosis. You must tell the Driver and Vehicle Licensing Agency (DVLA) that you have been […]

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Glasses for Double Vision

Glasses for Double Vision

It was double vision that led to my diagnosis of MS in 1994. Twenty years later double vision was turning into a serious problem. Prisms are included into the prescription and these are then glasses for double vision. The problem for me was that my double vision had reach the stage where prisms could not […]

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Quality of Life

Quality of Life

Call it the general well-being of an individual. Quality of life is a barometer of the mind How much do you enjoy each day? Do you have a reason to get up in the mornings? Do you look forward to tomorrow or do you wonder how you are going to get through these moments? My […]

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Traveljohn disposable urine bottle

Traveljohn disposable urine bottle

Imagine you are desperate to have a ‘Jimmy Riddle’ (widdle) or pass urine and there is nowhere to go. The TravelJohn Disposable Urine bottle does the trick when you gotta have a pee. It avoids the problem when you might wet your pants. It can be used by both men and women. Incidentally the Traveljohn disposable urine […]

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Multiple Sclerosis and Tai Chi

Multiple Sclerosis and Tai Chi

Tai Chi is a Chinese martial art. Shibashi, a form of Tai Chi, are 18 simple exercises that are easy to learn Recently I attended a physiotherapy session at the MS Therapy Centre at Halton where I was introduced to the Shibashi exercise routines. Multiple Sclerosis and Tai Chi Shibashi are coordinated movements performed in a […]

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Dog COA Non-Pull Harness

Dog COA Non-Pull Harness

The dog COA NON-PULL HARNESS is a winner; it’s a harness that does stop dogs pulling. Easy to use simple to fit The elastic web and mesh that covers the dog’s chest stretches and allowes natural movement. This allows maximum comfort for the dog, whilst giving the handler total control. There are four simple things […]

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Kitchen Blender with Food Processor

Kitchen Blender with Food Processor

An excellent Hand Held Kitchen Blender, it comes with an egg whisk, chopping bowl and a beaker. The hand held food blender weighs 700 gm (1lb 8oz) and has a very powerful motor. It is elegantly designed for food blending as well as being easy to use and the turbo button is a wonderful extra. […]

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MuSmate a walking aid for footdrop

MuSmate a walking aid for footdrop

I have foot drop in my left leg. When the problem started to be an issue I used the MuSmate a walking aid for foot drop. It stops me dragging my toes along the ground and tripping me up. Without the mechanical elastic device called a Musmate I could fall over very easily when walking. The Musmate […]

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Disabled Toilet Radar Key

Disabled Toilet Radar Key

I travel up to London via Euston Station quite often, when I get there I often need to go to the loo or else I might get ‘caught short’. A Radar Toilet Key is needed to get into the disabled toilets. It is time get a disabled toilet radar key. Used to go to the public loos […]

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Bedmadeez

Bedmadeez

The Buckingham Bedmadeez tool is an inspiration when you must  change the sheets on a bed. Bed making is easier. It is a ‘really’ clever product. It provides independence and enables you to do something that was not easy. It is such a simple idea and a very effective product. Easy bed-making Make the bed, […]

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The Helping Hand Reacher

The Helping Hand Reacher

Helping Hand Reacher is a sturdy, lightweight Reacher, so useful to have around the home. Pick things up from the fl0or This is  ideal for a person who has difficulty bending over or does not have good balance. It uses a simple trigger action to pick things up.  It is easy to use and ideal […]

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Good night Anti-Snoring Ring

Good night Anti-Snoring Ring

  Good Night Anti Snoring Ring is a simple solution to give you better sleep that actually works. Like all good things in this world it is not guaranteed to convert the room to a ‘no snore’ room but let’s be optimistic. You never know, you could change from a snoring person to a not […]

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Justatray

Justatray

Justatray Non Slip Easy Grip Dining Tray is a non-slip moulded tray with a shaped body incorporating three hand grips. Indentations to hold the contents in place, and the tray can be securely carried with one hand, leaving the other free to use a walking stick, for example. Designed in Britain, Justatray has won Best […]

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Christmas comes early for Julie Dean and family

Christmas comes early for Julie Dean and family

Christmas is a special time for many of us but for Julie Dean and family from Longwick this year’s will be a particularly happy and memorable one. Having been refused funding from their local council and giving up all hope of ever affording a much needed stairlift, Hertfordshire based company EMS Stairlifts came to their aid providing one completely free of charge […]

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