Double vision

Some of my MS disabilities are invisible

Some of my MS disabilities are invisible

Multiple sclerosis rules my life. Even when I think I am on the home run it will stick out a tentacle and trip me up. You too as well I guess. I have obvious disabilities such as walking, in fact I cannot walk unaided. Some of my MS disabilities are invisible. People will not know […]

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Multiple sclerosis is a vile disease

Multiple sclerosis is a vile disease

MS smothers you, wraps you up in its tentacles and replaces energy with fatigue. I can no longer do things that other people take completely for granted. Even worse there is nothing predictable about it except it just gets worse and worse and worse. It can even lurk in the body for years before its […]

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My long journey with multiple sclerosis

My long journey with multiple sclerosis

This is the story of 45 years of my life living with multiple sclerosis as we both grew up. I did not piece the whole story together until I took medical retirement in 2012. My long journey with multiple sclerosis. My long journey with multiple sclerosis It all started in 1972 and I was almost […]

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PIP face to face assessment

PIP face to face assessment

Finally Wednesday 1 August has arrived, it’s my PIP face to face assessment. I had not slept well the previous night. This was not just worry and stress, that irascible little friend MS was in the mix. I just could not get out of bed as early as usual. It was 4 hours later than […]

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After finishing the MS-SMART drug trial

After finishing the MS-SMART drug trial

I was a participant in the MS-SMART drug trial. If you look back over the blogs I wrote while I was on the trial my MS didn’t seem to get worse. A big question comes was after finishing the MS-SMART drug trial. Was I on a placebo, a treatment with no active therapeutic effect, or did the […]

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My MS clock has gone back a couple of years

My MS clock has gone back a couple of years

I started taking Fampridine just over a couple of weeks ago. Yes, YEs, YES it really has worked. Right now I’m not too sure if my walking speed has increased sufficiently to receive the drug beyond the trial period. That it will be a bummer. Put walking speed to one side then so many other […]

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MS-SMART drug trial after 92 weeks

MS-SMART drug trial after 92 weeks

Its almost 92 weeks since I started the MS-SMART drug trial. The time has flown by. The trial as been straight forward. Just pop a pill every morning and again in the evening. Well almost every evening, sometimes when I go out in the evening I forget to take one with me and when I get […]

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FCAROLYN silk eye patch

FCAROLYN silk eye patch

Double vision is possibly my biggest hidden disability. In April 2015 it reached a critical point. My optician could no longer correct the problem using prisms in my glasses.  I recently discovered the FCAROLYN Eye Patch. I think the FCAROLYN silk eye patch is such a good solution for double vision. FCAROLYN silk eye patch […]

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Some things I simply do not see 

Some things I simply do not see 

Vision is a bit of a mystery to me at times. Some things I can see perfectly well and some things I simply do not see. I know my vision is not 20/20 🙁 I always have to wear a pair of  glasses, I even have special reading glasses. Some things I simply do not […]

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A Letter to Multiple Sclerosis

A Letter to Multiple Sclerosis

A Letter to Multiple Sclerosis You first visited me a long time ago. It was 1972, I was 18 and having a pint or two of beer. I went to the loo for a pee but nothing happened. In 1979 I had a serious bladder spasm and I wet myself at work. You went away […]

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Glasses for Double Vision

Glasses for Double Vision

It was double vision that led to my diagnosis of MS in 1994. Twenty years later double vision was turning into a serious problem. Prisms are included into the prescription and these are then glasses for double vision. The problem for me was that my double vision had reach the stage where prisms could not […]

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I Wear an Eye Patch Because I have Double Vision

I Wear an Eye Patch Because I have Double Vision

I wear an Eye Patch because I have double vision. Double vision, led to my diagnosis of multiple sclerosis in 1994. Double vision did not become a serious problem for me until about 2012. I had double vision before then but prisms in my glasses were always able to eliminate the problem. The double vision can no […]

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Double Vision

Double Vision

I’m not too sure which is worse, double vision, drop-foot or squiffy balance.  At the moment the double vision wins hands down, ruins my quality of life. I had double vision this afternoon,  walked to the supermarket with my rollator, and I had to do everything with one eye shut all the time. I have […]

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