Independence and Quality of Life
I suffer from a progressive disease, I have less stamina now than 6 months ago, everything calls for a greater effort and it will only get worse.
A couple of questions
Do you think your disease is robbing you of your independence and taking away your quality of life? What steps are you taking to retain your independence and to stop your quality of life slipping away? Some people put their head in the sand – don’t do that.
It is vital that I retain my independence and maintain my quality of life. I must look at things positively and find out what I can still do. Use what I have not lost to retain both my independence and my quality of life.
Why a Musmate?
My left leg has very little strength. I cannot lift or even control the left foot. It has a mind of its own so I use a Musmate . The Musmate helps the mechanical process of walking by lifting my left leg off the ground when I swing the leg forward as I walk. Incidentally my left leg is a reason why I fall over so frequently.
This is a big issue with so many people who have MS. It was becoming a serious issue for me. Wherever I went I was looking how to get to the nearest loo just in case. It was controlling my life, I had to find a solution.
In 2007 the MS nurse showed me how to use a catheter for my dysfunctional bladder. Suddenly I was much more independent. Bladder control is something that is taken for granted until it starts to go wrong.
A car is an essential aid to modern life
I have double vision and bad peripheral vision so I cannot drive a car, too big a risk 🙁 At first I put on a brave face, saying that I was quite relieved not to have to drive again. I was working abroad at the time so I did not need a car during the week. I live in the middle of a town so getting to the shops was not an issue. The problems of not having a driving licence only hit me when I was at home between contracts. We thought a wheelchair would give me independence.
We bought a wheelchair
To get around in a wheelchair is much easier if the ground is flat and with no camber. I do not have the strength to push myself up a slope or across a camber. We originally bought a wheelchair because we were going to St Petersburg and I would not be able to manage the walking. I have not used it since we returned.
In 2009 the MS Therapy Centre at Halton suggested a rollator. Its wonderful, it means I can walk and sit down when I get tired. I can use it to carry my shopping.
Its really helpful
Using a rollator I can walk much further and faster. With a stick I can manage 200 metres, it takes me about 5 minutes and I must be on a flat and level surface. Using a rollator I can manage to walk about 1 Km and it does not have to be completely flat and level.
Travelscoot, my mobility scooter
I bought a Travelscoot in the summer of 2011, So many places suddenly became accessible. I do not have to depend upon other people to take me anywhere. It has given me independence and my quality of life has improved.
Your quality of life and independence?
Tell me about your quality of life and how you have overcome the problems that affect you. MS is bound to have been affected your independence, What steps have you taken to retain you r quality of life?
Problems, problems and more problems
Yes we all have issues and they need to be resolved. Have I given you any ideas?