My bladder

I’m sure that lots of people who have MS also have problems with their bladder. Its part of the package. Mine has been the bane of my life. Finding a loo in time, fear of wetting myself, UTI’s and have I got my catheters. These are some of the problems that I have had to live with for a very long time.

I hope that by talking about these issues on my website people will become more aware of the problems. They must stop ‘just putting up’ with a wonky bladder. People need to go out and find solutions. I have been there, too frightened to talk about it but at the end of the day that is not the answer.

If your bladder is a bloody nuisance then go and talk to a someone who can help you. It was many years until I could man-up and talk about it.

It all started in 1972, 22 years before my diagnosis. I eventually saw a Uro Neurolgist at the Neurological hospital in Queens Square London in 2016 who said I needed Botox. In February 2017 I had Botox injections, a very large elephant then left the room.

I will eventually tell you the full story. Meanwhile these are my stories. I hope they help you to understand the problem and find a solution.

Life before diagnosis of multiple sclerosis

Life before diagnosis of multiple sclerosis

I was diagnosed with multiple sclerosis in 1995 but my journey started much earlier. In 1972 when I was nearly 18 I was in the pub having some beers with a couple of friends. Suddenly I had the urge to go to the loo but when I went nothing happened. I didn’t think anything of […]

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Is liberation and freedom just a Botox away?

Is liberation and freedom just a Botox away?

On Wednesday 1st Feb I went to Queens Square to receive Botulinium Toxin or Botox injections into my bladder. I had wanted the injections for over two years. Life with a badly behaved as well as irritable bladder is no joke. I had learnt a lot of techniques to make life with this handicap easier. […]

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I wake up every night to visit the lavatory

I wake up every night to visit the lavatory

I saw my MS consultant for the annual visit in November 2016. He asked me if there were any changes since my last visit to the clinic. I said to him “Now I wake up every night to visit the lavatory and have a tiny pee”‘ I wake up every night to have a pee […]

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Finally I think progress is being made

Finally I think progress is being made

A couple of weeks ago I wrote a post expressing my frustration with trying to get Botox treatment for my bladder. If you missed the post and would like to read it then please click HERE. Yes, I was unbelievably frustrated. Overnight the hospital had shunted my appointment from the next day to March next […]

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Man still needs Botox for his bladder

Man still needs Botox for his bladder

I need Botox injections to control my bladder spasticity. This issue has been rocking around my locker for more than a couple of years. I have written about these problems far too often. You must be bored with them.  Even I admit this subject does not come top of my reading list. Well read on, […]

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I use incontinence pads

I use incontinence pads

Oooo, this is a difficult subject It is something I had to man-up to quite seriously several years ago. I have had bladder problems since I was a young man, multiple sclerosis has a lot to answer for 🙁 Nowadays I use incontinence pads because of the irritable bladder. I only wear normal underwear The […]

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6 comments

My Badly Behaved Bladder

My Badly Behaved Bladder

Sometimes you just want your MS problems to go away. I know the severity is different for everyone but there are times when the niggles just get to be too much.  My badly behaved bladder has been around for over 35 years. Slightly longer than I have been married. My badly behaved bladder Its not […]

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Something prevents a good sleep

Something prevents a good sleep

It all started in the middle of last year, 2015, I had an appointment to see a urology consultant. I was having problems with leaking urine before I inserted a catheter to have a pee. Only very very occasionally was there a total disaster. Accidents do happen and very occasionally I have to change my […]

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Caffeine is the world’s most widely consumed drug

Caffeine is the world’s most widely consumed drug

Caffeine is the world’s most widely consumed drug. It changes brain function and results in alterations in perception, mood or consciousness. Unlike many other psychoactive substances it is legal. If you have MS and an unreliable bladder then caffeine is definitely bad news. I love a cup or two of coffee in the morning but there is a price […]

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Catheters for Intermittant Self-Catheterisation

Catheters for Intermittant Self-Catheterisation

I have been using catheters for  intermittent self-catheterisation since 2006 and used Coloplast for many years. Coloplast catheters I started by using the Coloplast 14 inch catheter; this was fine for use in the house but potentially embarrassing when out and about. At work, for example, how do you carry something into a loo that is […]

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Traveljohn disposable urine bottle

Traveljohn disposable urine bottle

Imagine you are desperate to have a ‘Jimmy Riddle’ (widdle) or a pee and there is nowhere to go. The TravelJohn Disposable Urine bottle does the trick when you gotta have a pee. It avoids the embarrassment of wetting your pants. It can be used by both men and women. Incidentally the Traveljohn disposable urine bottle is […]

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Should I Have Suprapubic Catheter

Should I Have Suprapubic Catheter

A friend has been urging me to stop intermittent self-catheterisation (ISC) and use a suprapubic catheter. Her argument being that it is not a good idea to be inserting a catheter into your bladder several times a day. She is worried about infections and damage to the bladder. She says everything is more stable and less […]

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Story of a Urinary Tract Infection (UTI)

Story of a Urinary Tract Infection (UTI)

Here is a diary of a sorry story that happened to me. This sequence of events resulting in a urinary tract infection could easily happen to any MSer who does intermittent self-catheterisation. A brief summary of the events over the last 3 weeks I was an emergency admission to Watford hospital and I needed a […]

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A visit to the dentist and an overactive bladder

A visit to the dentist and an overactive bladder

Too many multiple sclerosis sufferers have an overactive bladder. The chances are that you will have a prescription for ‘anti-cholinergic’ drugs. These drugs stop the bladder going into spasm and that’s a good thing. Sadly there is no such thing as a free dinner, these drugs have several side effects. I had a dental appointment and […]

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Disabled Toilet Radar Key

Disabled Toilet Radar Key

I travel up to London via Euston Station quite often, when I get there I often need to go to the loo or else I might get ‘caught short’. A Radar Toilet Key is needed to get into the disabled toilets. It is time get a disabled toilet radar key. Used to go to the public loos […]

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Bladder problems and MS

Bladder problems and MS

Nearly everyone has the misfortune to suffer from bladder problems and MS. Sadly I am one of them. Bladder problems and MS If you do have MS and a good bladder then count yourself very lucky. It is thought that as many as 90% of people with MS will have bladder problems at one time […]

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An unreliable bladder

An unreliable bladder

When my bladder suddenly decides to empty itself and I cannot get to the loo, there is severe embarrassment. What causes an unreliable bladder, otherwise known as urinary incontinence, and what can I do to make my life easier? An unreliable bladder I’m not giving a medical solution, This is about how I cope. I’ve […]

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