MS society walk
On Sunday, 24 September I went to Battersea Park in London to take part in the MS society walk. I left the house at a 8:45, caught the train to Euston and arrived at the start just after 11. I had hoped to be there earlier. Getting to Battersea Park from Euston station by public transport is not easy.
The MS society walk
It was a lovely sunny day and it started at the bandstand in Battersea Park. Maybe its the MS, I’m just not very good at finding things, I had to ask several people. By the time I arrived the walk had started. There was a zumba session at the beginning which I missed and would have made the day more exciting. I only had myself to blame.
Battersea Park was full of people enjoying the sunshine and fresh air. There were people running, walking or cycling on tricycles and bicycles. Many people were wearing smart and possibly expensive exercise outfits. I felt stunningly underdressed but I was on my Travelscoot.
By the time I arrived
Everyone had set off on their walk. Nonetheless I was issued with a bright orange MS society T-shirt which I put on, given some water, emergency rations and a map for the 6K walk.
When I reached the end of the walk back at the bandstand I must admit I felt slightly depressed. I saw no signs of celebration for people who had finished the walk. There was a steel band playing but no party atmosphere.
Over 600 people took part that day
I couldn’t help but feel that the wrong message was being given to the public. The message on the T-shirt said ‘let’s stop MS together’. I did not see any interaction between the MS society and the participants with the general public. I then saw people finish the walk and leave the park on foot.
The public must assume everyone with MS can walk and does not suffer any physical disability. I asked one of the volunteers at an entrance to Battersea Park how many mobility scooters had he seen that day. He told me he had seen about five.
MS sufferers, their family and friends know how crippling this disease can be. It takes me over 45 minutes to walk 1 km. I did it at the beginning of September. The public at the Battersea Park did not see the real world of MS. I suspect many of the walkers were friends or family of people with MS who were unable to participate.
Why didn’t the society arrange walks of 500 m or 1 km for people like me who struggle to walk and must use a Rollator? It’s not difficult at Battersea Park, plenty of smooth flat road to walk on. The general public would then for themselves how MS really does destroy lives.
Do you feel that the MS society seems to exist in a parallel universe or is it just me? Do you think it is sufficiently proactive in helping people with advanced MS?
For a start it should consider arranging the next walk using the facilities provided by Parallel London in the Olympic Park. There are distances from 100 m to 10 K. It is completely accessible with good car parking and excellent public transport links. Westfield shopping centre is only a stone’s throw away with shops and plenty of places to eat.
Lots of thought provoking questions. What are your thoughts?