Walking

I attempt a stupid walking challenge, only 100 Km

I attempt a stupid walking challenge, only 100 Km

Earlier this year I tried a stupid walking challenge, only a mere 100 Km over 10 months. I have used an FES for over six years, it  helps my walking. A year ago I completed a one hour walk. At the end I was exhausted but it was deeply satisfying especially as I raised over […]

Read More...

0 comments

Broken skin: my Functional Electrical Stimulation story

Broken skin: my Functional Electrical Stimulation story

MS affects my left leg and I have been using an FES since late 2014. For the previous 10 years I had used a Musmate a simple mechanical device that is a walking aid for foot-drop. My foot-drop and leg-drop mean that I cannot walk unaided and I walk very slowly. My Functional Electrical Stimulation […]

Read More...

0 comments

A sponsored walkathon by me with my MS

A sponsored walkathon by me with my MS

Last year I challenged myself to keep walking for one hour. I did that in September. Then I set myself a challenge for 2021. Complete 25 walks each month of the year each one at least 500 metres. I managed 25 walks in January, on target. Snow, wind, rain and frost totally ruined my plans […]

Read More...

0 comments

With MS I now move like a tortoise slow but steady

With MS I now move like a tortoise slow but steady

As I move forward through time, ticking off the years, multiple sclerosis has an ever growing impact upon my life. Nowadays I must always have one hand holding onto something firm and stable. The happy days of nipping upstairs or popping next door are history. Now everything must be carefully considered. I now move like […]

Read More...

4 comments

I’m a lucky guy Fampridine works for me

I’m a lucky guy Fampridine works for me

I take Fampridine and use an FES or Functional Electrical Stimulator, they both improve my quality of life. I can only walk with a rollator and it is agonisingly slow. Without them I would have to use a wheelchair. OK. my left leg is useless courtesy MS but I do have an excellent right leg. […]

Read More...

2 comments

The day I walk for one hour

The day I walk for one hour

Its a wonderful September day. Warm enough to wear shorts but not so hot to become a shade seeking missile. Three months of preparation and I had one hour to prove that I could do it. Yup, Sunday 13th September was the day when I was going to walk for one hour and you had […]

Read More...

8 comments

I’m planning a sponsored walk #Walk4onehour

I’m planning a sponsored walk #Walk4onehour

Lockdown and my world is changing. Still no one knows anything about the future. I knew I had to get out of the house and take some exercise to maintain my mental health plus I needed a goal. A sponsored walk. Perhaps I could organise it and do it, this would tick so many boxes. […]

Read More...

2 comments

I must ensure exercises become a routine activity

I must ensure exercises become a routine activity

18 April 2020. The coronavirus lock down started at the end of March. Our lives were then thrown into chaos. Everyone had to find a new routine, a new rhythm and this includes me. I made a simple promise to myself. I need to take more exercise and I must ensure the exercises become a […]

Read More...

4 comments

Some of my MS disabilities are invisible

Some of my MS disabilities are invisible

Multiple sclerosis rules my life. Even when I think I am on the home run it will stick out a tentacle and trip me up. You too as well I guess. I have obvious disabilities such as walking, in fact I cannot walk unaided. Some of my MS disabilities are invisible. People will not know […]

Read More...

4 comments

MS Society introduces the 1 Km walk

MS Society introduces the 1 Km walk

Sport is an area of society in which ableism is seen only too often. Finally the society is embracing people with progressive MS and mobility issues in a positive way. Eventually the MS Society introduces the 1 Km walk It is only within the last ten to fifteen years that Western society recognises athletes with […]

Read More...

5 comments

After finishing the MS-SMART drug trial

After finishing the MS-SMART drug trial

I was a participant in the MS-SMART drug trial. If you look back over the blogs I wrote while I was on the trial my MS didn’t seem to get worse. A big question comes was after finishing the MS-SMART drug trial. Was I on a placebo, a treatment with no active therapeutic effect, or did the […]

Read More...

2 comments

Walking round the supermarket with a trolley

Walking round the supermarket with a trolley

When I started taking Fampridine the physiotherapist was insistent that I take more exercise. I mentioned that I go to the supermarket every day and do the shopping on The Trike (3 wheel light-weight mobility scooter). Her eyes lit up, “I know what you can do” she said. “This is an idea. Walking round the supermarket […]

Read More...

10 comments

My MS clock has gone back a couple of years

My MS clock has gone back a couple of years

I started taking Fampridine just over a couple of weeks ago. Yes, YEs, YES it really has worked. Right now I’m not too sure if my walking speed has increased sufficiently to receive the drug beyond the trial period. That it will be a bummer. Put walking speed to one side then so many other […]

Read More...

8 comments

Will Fampridine improve my quality of life

Will Fampridine improve my quality of life

The physiotherapists at Queens Square neurological hospital offered me Fampridine in the summer of 2017. I knew that Fampridine also known as Fampyra could improve my walking speed. Sadly it doesn’t make the process any safer. None the less I reckoned it was worth trying out. Will Fampridine improve my quality of life When I […]

Read More...

11 comments

MS society walk

MS society walk

On Sunday, 24 September I went to Battersea Park in London to take part in the MS society walk. I left the house at a 8:45, caught the train to Euston and arrived at the start just after 11. I had hoped to be there earlier. Getting to Battersea Park from Euston station by public […]

Read More...

8 comments

Parallel London sponsored walk

Parallel London sponsored walk

I’ve just completed the 1 km Parallel London sponsored walk and raised over £1300. The walk was the easy bit. There was a place to start, I had my Rollator, the route was marked out and there was a finish. The journey to arrive was the nightmare. I set my alarm for 8 o’clock on Sunday […]

Read More...

8 comments

Can I walk at least six kilometres

Can I walk at least six kilometres

On 24th September 2017 the MS Society is organising a sponsored walk called ‘Together we walk’. On their website they state ‘This September hundreds of MS Superstars, our friends and families, will join forces in London to take in the sights and raise funds to stop MS. Will you join us?’ Can I walk at […]

Read More...

8 comments

Capability for Work questionnaire

Capability for Work questionnaire

Every once in a while the postman delivers a letter and I think ‘Uh oh this could be trouble’. On the front of this letter in big black letters I was told ‘IMPORTANT INFORMATION THIS IS NOT A CIRCULAR’ and it was ‘PRIVATE &  CONFIDENTIAL’. The really important clue was the sender, printed on the back […]

Read More...

2 comments

Another sponsored walk

Another sponsored walk

Well it’s another year and I am starting to think about one of my annual challenges. I like to have challenges. They have to be achievable and put me outside of my comfort zone. So time for another sponsored walk. The right distance In 2015 I had tried to walk a mile with my rollator […]

Read More...

2 comments

What would I like returned to me by Multiple Sclerosis?

What would I like returned to me by Multiple Sclerosis?

What would I like returned to me by Multiple Sclerosis? I’m talking about basic abilities, ones I have lost for ever. The list is far too long to bore you. In my dreams there is only I would like back. I’m sure it’s something lots of people take for granted. Right now I am really […]

Read More...

8 comments

Red Telescopic Anti-Shock Hiking Walking Stick

Red Telescopic Anti-Shock Hiking Walking Stick

This is a simple and sturdy Red Telescopic Anti-Shock Hiking Walking Stick. It is telescopic so you can also use it as a walking pole. It has a non slip handle that means it is easy to hold it as a walking stick. There is strap that you can put round your wrist so you cannot […]

Read More...

0 comments

Every morning its four sticky FES electrodes

Every morning its four sticky FES electrodes

Every morning its four sticky FES electrodes. I must put them on my left leg. Two go onto my thigh and two go just below the knee. I started using the FES two years ago in December 2014. I estimate that I have taken the sticky electrodes off about 720 times and put them back […]

Read More...

6 comments

WorldvsMS challenge and The Amsterdam HACK

WorldvsMS challenge and The Amsterdam HACK

The WordvsMS campaign is an initiative that had been setup to give a voice to people with Multiple Sclerosis. The campaign has asked people with MS to list their challenges in everyday life. Three challenges were accepted from 103 that were submitted A weekend in mid-November was selected when groups of people were invited to […]

Read More...

6 comments

I had a wonderful sailing holiday

I had a wonderful sailing holiday

I had a wonderful sailing holiday Earlier this year in 2016 I had a wonderful sailing holiday. Click HERE to read about it. I signed up to go sailing with the JST (Jubilee Sailing Trust) on the Lord Nelson. It was a six day trip from Southampton to France and back to Southampton. Help me […]

Read More...

0 comments

Walking is sensible exercise

Walking is sensible exercise

Walking is sensible exercise. It is gentle, and it is low impact. It’s simple and effective. Even better, its free. Sensible exercise is about increasing your general activity and finding things to do that you enjoy. OK, I know that some of you can’t walk, it must be so frustratng. I can’t walk unless I […]

Read More...

0 comments

The FES Really Changed My Life

The FES Really Changed My Life

The FES really changed my life. I am quite sure it was the Functional Electrical Stimulator otherwise known as an FES. Originally fitted in December 2014. I immediately stopped falling over with monotonous regularity. Instead I stayed upright, it changed my life for the better . So many people commented that I looked better and […]

Read More...

2 comments

Essential Extras For The Topro Troja Rollator

Essential Extras For The Topro Troja Rollator

The Topro Troja rollator is a reliable walker if you have difficulty with balance Maybe you find walking difficult or struggle carrying items such as a plate of food. I have used these rollators for several years. I’m a happy customer. I am going to tell you about some essential extras for the Topro Troja […]

Read More...

2 comments

Were There Any Benefits Doing The MS Mile?

Were There Any Benefits Doing The MS Mile?

 Were the any benefits walking the MS mile? Definitely! On the 9th September I walked the MS mile. Definitely YES 🙂 I raised just over £ 1,700 for the Chilterns MS Therapy Centre I proved to myself I could walk three quarters of a mile even with a rollator :-)) Taking exercise on a regular basis, […]

Read More...

4 comments

Two channel FES

Two channel FES

I was fitted with a single channel Functional Electrical Stimulator (FES) in mid December.  Sixteen weeks later, at the end of March I was upgraded to a Two Channel FES. The original FES is only able to stimulate one muscle; the new one can stimulate two muscles. The original FES stimulates the muscle to lift the front of the foot. […]

Read More...

0 comments

FES, 4 weeks later

FES, 4 weeks later

I was fitted  with a Functional Electric Stimulator (FES) in December 2014. No expectations FES has changed my life but not in ways that I was expecting. Actually I did not really have any expectations. I had not done any research into it; at times I’m so idle. I was only getting one fitted because […]

Read More...

0 comments

Walking is 28% Faster with an FES

Walking is 28% Faster with an FES

This is a big question. Can I walk faster with an FES or Functional Electrical Stimulator? How can an FES help me to walk faster? Will it help me? In my previous post about FES I explained how this gadget should help me with my walking. My second visit to the National Hospital for Neurology […]

Read More...

0 comments

FES (Functional Electrical Stimulation)

FES (Functional Electrical Stimulation)

I have foot drop and it has got progressively worse over the last 10 years. FES my new walking aid Foot drop is a paralysis or muscular weakness that makes it very difficult to lift the front part of your foot and toes. It can also be called drop foot. It can cause you to drag your […]

Read More...

1 comment

Yes I Agree, Exercise is Good For MS Sufferers

Yes I Agree, Exercise is Good For MS Sufferers

Lots of learned people are now saying that exercise is good for MS sufferers and yes I agree. I have always thought that exercise is good for you. On what basis can I back up this obvious statement for MS sufferers? A bit of background Our Golden Retriever, Tonks, did something to one her knees […]

Read More...

0 comments

MuSmate a walking aid for footdrop

MuSmate a walking aid for footdrop

I have foot drop in my left leg. When the problem started to be an issue I used the MuSmate a walking aid for foot drop. It stops me dragging my toes along the ground and tripping me up. Without the mechanical elastic device called a Musmate I could fall over very easily when walking. The Musmate […]

Read More...

3 comments

Beaumont Leg Rest to get the weight off your feet

Beaumont Leg Rest to get the weight off your feet

Beaumont Leg Rest is a smart stool to use to rest your legs. Use it when your feet feel tired. Its sturdy and it has variable height adjustment between 38.5 cm and 53.5 cm Put your feet up in comfort and relax so you can enjoy a rest at any time of the day. It […]

Read More...

0 comments

Length of a Walking Stick

Length of a Walking Stick

A walking stick is the lightest walking aid to help with balance when walking.  It is not designed to be used as a crutch to support your full weight. A stick sends a signal to tell people that your balance is not perfect. So if you are a bit wobbly on your legs use a […]

Read More...

2 comments