Independence

Methods I use to manage my multiple sclerosis

Methods I use to manage my multiple sclerosis

Multiple sclerosis is a very unpredictable disease and tough to live with. I think we all know that; I certainly do. MS has now been a part of my life since 1972 but I was not diagnosed until 1995. Here some methods I use to manage my advanced multiple sclerosis. Everyone has their own way […]

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Simple things I now need to understand

Simple things I now need to understand

A few years ago I kidded myself that I could still do the things just like I did in the noughties. Simple things I now need to understand. “Don’t worry, I can do it” I shouted enthusiastically as I was starting jobs like cooking supper. It would all begin swimmingly. Suddenly, out of the blue, […]

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My amazing Travelscoot and true independence

My amazing Travelscoot and true independence

Guest post written by Abgail Budd.  I finally accepted my need for wheels in 2014, six years after my diagnosis of multiple sclerosis. I’d been spending time with local people who also suffer from MS. I had struggled with 2 walking sticks but I would miss out on so much due to sheer exhaustion and […]

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Trabasack Curved Lap Tray and Bag

Trabasack Curved Lap Tray and Bag

Trabasack Curved LapTray and Bag is designed for use on a wheelchair. Its a new concept, beanbag lap tray that you carriy like a bag and use it on your lap whenever you need it. The tray inventor is a wheelchair user who fully understands what is necessary to make it useful. You could say it […]

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DWP will discover and evaluate what I cannot do

DWP will discover and evaluate what I cannot do

The DWP have kept their side of the bargain. I have received a form so I can explain how my disability affects me. It’s a horror, 40 pages booklet with about 45 questions and statements to be completed. DWP will discover and evaluate what I cannot do. I am then awarded PIP benefits but its […]

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Your Disability Living Allowance is ending

Your Disability Living Allowance is ending

It was the usual brown envelope from the DWP with a return address of DWP PO Box 535 Belfast. It’s never an expensive white envelope and it’s never by first-class mail. Their letters always arrive on a Saturday morning just like this one, 21 April 2018. I opened it, the message was very simple, Your […]

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Does my disability make me worth less?

Does my disability make me worth less?

So Christmas is done and dusted for another year. Decorations have been taken down and put in the loft. The Boy Scouts have collected the tree and recycled it. We’ve even managed to empty the fridge. Now wouldn’t it be lovely if I could just pack up my MS and store that in the loft […]

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Getting the best from my life

Getting the best from my life

Enjoying life, it is the reason to get out of bed each morning. Okay I do have a few problems but hey who doesn’t? I’ve had multiple sclerosis for over two thirds of my life and now I’m medically retired. I’m still learning the art of getting the best from my life. The biggest game […]

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Disabled access is not a tick box exercise

Disabled access is not a tick box exercise

Access and facilities for physically disabled people are needed today and why ever not? It would be so unreasonable in this day and age to exclude the physically disabled from our activities. From my experience disabled access is turning into a tick box exercise. Remember disabled access is not a tick box exercise. Disabled access […]

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Action packed couple of days in Barcelona

Action packed couple of days in Barcelona

I flew out to Barcelona for a couple of days. I took The Trike with me as one does.  No, I was not going on a holiday. It was for a meeting with RADAR-CNS. A research project wanting to develop ways to measure Long Term Conditions using wearable devices and smartphone technology. I was there as a […]

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Reasons why I enjoy my Travelscoot

Reasons why I enjoy my Travelscoot

I first saw a Travelscoot in the summer of 2010. Straight away I knew it was going to be the ideal solution for me. By then multiple sclerosis had limited my walking to the extent that I struggled to walk more than a mile. Up until then I had managed with a manual wheelchair but […]

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The Wife and I went on a London Road Trip

The Wife and I went on a London Road Trip

The Wife and I went on a London road trip on Saturday 18th March. See the Hockney exhibition at the Tate Britain and then on to the Coliseum to see Pirates of Penzance. It’s always the other little events that make the day interesting. The Road Trip The Wife and I travelled into London independently. […]

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Red Telescopic Anti-Shock Hiking Walking Stick

Red Telescopic Anti-Shock Hiking Walking Stick

This is a simple and sturdy Red Telescopic Anti-Shock Hiking Walking Stick. It is telescopic so you can also use it as a walking pole. It has a non slip handle that means it is easy to hold it as a walking stick. There is strap that you can put round your wrist so you cannot […]

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Di Blasi R30 Folding Mobility Scooter

Di Blasi R30 Folding Mobility Scooter

A mobility scooter that folds up on the press of a button. It seems a genuine novelty but the Di Blasi R30 Folding Mobility Scooter is not the only one on the market. Click here to find out more about it. I like the 1930’s style and the large wheels so it can go over […]

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Aidapt Wood Button Hook or Zipper

Aidapt Wood Button Hook or Zipper

The Aidapt Wood Button Hook or Zipper is a handy device for doing-up buttons and pulling a zip up or down. Its easy to use, there is a loop at one end for buttons and a hook at the other for zips. The button loop simply passes through the button hole and clips around the button which […]

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Regional Driving Assessment Centre

Regional Driving Assessment Centre

The Regional Driving Assessment Centre has been in existence since 1998. It is one of 17 driving assessment centres throughout the country. It is an accredited member of the Forum of Mobility Centres.  The Regional Driving Assessment Centre helps over 1500 people a year. Most of whom are able to return to driving or start driving […]

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Mobility challenges

Mobility challenges

MS is not a good disease and many sufferers have difficulty getting around. Shall we call these mobility challenges? We are all different Each MS sufferer has a unique set of problems the usual culprits are walking, mobility and balance. There are plenty more problems in case you were wondering. Here are some of my […]

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Toilet Frame with Adjustable Height and Width

Toilet Frame with Adjustable Height and Width

There time may well come when a Toilet Frame with Adjustable Height and Width is very helpful when you need to sit down or get up from the loo. Be as independent as possible. This toilet frame is designed to give you that independence. It will make life just that little bit easier even if you […]

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BT Big Button 200 Corded Telephone

BT Big Button 200 Corded Telephone

BT Big Button 200 Corded Telephone is an affordable, easy to use ‘phone with numerous advantages. Ideal for elderly people especially those with hearing problems. It is an easy to use and accessible phone. All in all it is excellent for older people with failing sight or hearing. The big numbers and big buttons make it much easier […]

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The Hydrant 1 Litre Drinking Bottle

The Hydrant 1 Litre Drinking Bottle

The Hydrant 1 Litre Drinking Bottle allows you to have a drink even if lying flat on your back in bed. The bottle is designed so you can have a drink when you want a drink. Even if you are stuck in bed and cannot move then this allows you to be more independent. No need […]

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Dog agility Julie from Suffolk helps to raise over £1,200 for MS Society

Dog agility Julie from Suffolk helps to raise over £1,200 for MS Society

Julie Thomson, 53, from Stansted, has Multiple Sclerosis She successfully displayed her dog agility prowess on her amazing TGA Breeze 3 mobility scooter at Ace Agility’s fundraising event for the MS Society on Easter Sunday, helping to raise over £1,200. The event was held at Braggons Farm, Glemsford, Suffolk and was attended by over 120 […]

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Plan B

Plan B

Plan A & Plan B I nearly always plan out what I’m going to do, that’s plan A, then occasionally I think about plan B. Plan A & Plan B What to do in an emergency, its obvious but surprising how often I forget about it. I get halfway through the day, sit down and […]

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Topro Troja Rollator

Topro Troja Rollator

The Topro Troja Rollator is a robust and reliable 4 wheeled walker. It is recommended to many multiple sclerosis sufferers who walk with difficulty and have poor balance. I have advanced MS and suffer from these problems. This rollator is good because it is light as well as robust. It is very easy to close up […]

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Folding lightweight rollator

Folding lightweight rollator

The day has arrived when I absolutely need to use a rollator. I am finding it difficult to walk around the house safely. I have to ‘furniture walk’ to keep my balance. A poor sense of balance and footdrop because but I cannot lift up my left leg means it very easy for me to […]

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Motability

Motability

Motability helps disabled people have a more independent life style. Motability enabled them to own a car or a powered wheelchair To do this you contribute all or part of  the higher rate mobility element of the Disability Living Allowance (DLA). Motability is a registered charity It has overall responsibility for the Motability Scheme, it […]

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80 year old Shropshire farmer continues to run his farm

80 year old Shropshire farmer continues to run his farm

Robert Mund is 80, determined to run his farm, and his mobility is restricted because of two hip replacements. He relies on a rugged mobility scooter to manage his herd of 40 cattle. I hope that I can be equally active when I am 80. Robert Maund, 80, from Betton Strange near Shrewsbury, Shropshire, is […]

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Train travel for the disabled

Train travel for the disabled

If you are going to use the trains and you are disabled then here are a few tips that will make train travel easier. Traveling by train can be a daunting process  especially if you have never done it before. Do not be frightened. There is always someone who will be only too willing to […]

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The Topro Olympos Rollator

The Topro Olympos Rollator

I own a Topro Olympos Rollator it has four big wheels and it is designed to be used outdoors. It is a very stable rollator. The large wheels make it so easy to use when walking over uneven pavements, cobbles even gravel. It rolls along easily and smoothly. It gives me independence and improves my quality of life. […]

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London Access App for the disabled

London Access App for the disabled

The London Access App is available on an iphone and gives disabled people independence and consequently a better quality of life. It can be used by a person with either physical or sensory disabilities or  even both.  Families using a buggy or the elderly will also find this app useful. The app was written by […]

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Completing forms properly

Completing forms properly

I am disabled, I have advanced MS and I cannot work. Completing forms properly is essential if I am to receive any state benefit. Disability Living Allowance, Incapacity Work Benefit are forms to be filled in. These forms are a nightmare, lots of difficult questions. They must be answered correctly if you are to have […]

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Articles published in the MS Press

Articles published in the MS Press

I have had some articles published in Multiple Sclerosis magazines.  They are talking about setting up the website, me, how I cope with disability and the disease. It is essential that I retain my independence and make sure that my quality of life continues to be as good as possible. There are certain things that […]

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