Balance

Oxo Good Grips angled measuring jug

Oxo Good Grips angled measuring jug

Oxo Good Grips angled measuring jug is a new take on an established design. It is a very practical addition to your kitchen. It’s so easy to use. When I want to measure hot or cold liquid I place the Oxo measuring jug on a work surface. Now I can sit down in a chair […]

Read More...

0 comments

Is physical exercise good for me

Is physical exercise good for me

I believe that exercise is good for me and essential to having a good quality of life even despIte suffering from aDVANCED ms MS. It is an excellent activity to re-connect the mind and body before or after a long day of stress. My MS stops aerobic exercise, getting all hot and sweaty. Even just […]

Read More...

0 comments

Multiple sclerosis is a vile disease

Multiple sclerosis is a vile disease

MS smothers you, wraps you up in its tentacles and replaces energy with fatigue. I can no longer do things that other people take completely for granted. Even worse there is nothing predictable about it except it just gets worse and worse and worse. It can even lurk in the body for years before its […]

Read More...

4 comments

Simple things I now need to understand

Simple things I now need to understand

A few years ago I kidded myself that I could still do the things just like I did in the noughties. Simple things I now need to understand. “Don’t worry, I can do it” I shouted enthusiastically as I was starting jobs like cooking supper. It would all begin swimmingly. Suddenly, out of the blue, […]

Read More...

0 comments

Walking round the supermarket with a trolley

Walking round the supermarket with a trolley

When I started taking Fampridine the physiotherapist was insistent that I take more exercise. I mentioned that I go to the supermarket every day and do the shopping on The Trike (3 wheel light-weight mobility scooter). Her eyes lit up, “I know what you can do” she said. “This is an idea. Walking round the supermarket […]

Read More...

10 comments

Looking on the bright side of life

Looking on the bright side of life

Everyone who has progressive MS has their own unique set of difficulties. The issues can’t be papered over, they are with you day in, day out, all day and every day. I have one visible problem, mobility or balance and an invisible problem, my bladder. Of course I’m always looking on the bright side of […]

Read More...

6 comments

Does my disability make me worth less?

Does my disability make me worth less?

So Christmas is done and dusted for another year. Decorations have been taken down and put in the loft. The Boy Scouts have collected the tree and recycled it. We’ve even managed to empty the fridge. Now wouldn’t it be lovely if I could just pack up my MS and store that in the loft […]

Read More...

13 comments

Just another little fall

Just another little fall

In the kitchen I must use a stool on wheels. The Wife and I were cooking supper last Sunday and everything was getting a bit fraught. Not enough pairs of hands to prepare everything. I moved forward on my stool but a wheel got stuck in the grouting between two floor tiles. The stool stopped […]

Read More...

3 comments

Nobody mentioned grab rails

Nobody mentioned grab rails

I guess a few of you who are reading this have got that irritating little disease, multiple sclerosis. It’s the way it advances. Step by step it creeps up on you. It’s funny how something that wasn’t a problem changes and becomes a problem. Even worse, suddenly its an ‘in your face’ problem. We had […]

Read More...

6 comments

MS-SMART drug trial after 92 weeks

MS-SMART drug trial after 92 weeks

Its almost 92 weeks since I started the MS-SMART drug trial. The time has flown by. The trial as been straight forward. Just pop a pill every morning and again in the evening. Well almost every evening, sometimes when I go out in the evening I forget to take one with me and when I get […]

Read More...

5 comments

Stumble fall crunch and wallop

Stumble fall crunch and wallop

Monday evening We had finished watching episode 5 of Line of Duty. No spoilers I promise. Program finished and we were done. All that was left was to clear up the room and toddle off to bed. The Wife had taken the glasses through to the kitchen. All I had to do was switch off […]

Read More...

6 comments

Saddle stool to move around in the kitchen

Saddle stool to move around in the kitchen

I suffer from advanced multiple sclerosis and I cannot walk or stand unaided. I use a variable height saddle stool, it makes my life so much easier. Now I can easily move around in the kitchen. What a change it has made to my life. Now I can move around in the kitchen doing jobs that […]

Read More...

8 comments

What would I like returned to me by Multiple Sclerosis?

What would I like returned to me by Multiple Sclerosis?

What would I like returned to me by Multiple Sclerosis? I’m talking about basic abilities, ones I have lost for ever. The list is far too long to bore you. In my dreams there is only I would like back. I’m sure it’s something lots of people take for granted. Right now I am really […]

Read More...

8 comments

Red Telescopic Anti-Shock Hiking Walking Stick

Red Telescopic Anti-Shock Hiking Walking Stick

This is a simple and sturdy Red Telescopic Anti-Shock Hiking Walking Stick. It is telescopic so you can also use it as a walking pole. It has a non slip handle that means it is easy to hold it as a walking stick. There is strap that you can put round your wrist so you cannot […]

Read More...

0 comments

Every morning its four sticky FES electrodes

Every morning its four sticky FES electrodes

Every morning its four sticky FES electrodes. I must put them on my left leg. Two go onto my thigh and two go just below the knee. I started using the FES two years ago in December 2014. I estimate that I have taken the sticky electrodes off about 720 times and put them back […]

Read More...

6 comments

WorldvsMS challenge and The Amsterdam HACK

WorldvsMS challenge and The Amsterdam HACK

The WordvsMS campaign is an initiative that had been setup to give a voice to people with Multiple Sclerosis. The campaign has asked people with MS to list their challenges in everyday life. Three challenges were accepted from 103 that were submitted A weekend in mid-November was selected when groups of people were invited to […]

Read More...

6 comments

Going back to Pilates

Going back to Pilates

I have missed my last four Pilates’ sessions. They are on a Friday morning but I have been away. Going back to Pilates was a bit like going back to school after the Easter or Christmas break. Going back to Pilates Don’t get me wrong I enjoy Pilates. It helps me with the biggest problems […]

Read More...

2 comments

Its when the unexpected happens

Its when the unexpected happens

Its when the unexpected accident happens. Inevitably I get stressed and this feeling lasts for a couple of hours. When I am feeling fragile it does not take much to tip me over the edge. Most of the time I’m as tough as old boots. Its when the unexpected happens The problem is the MS. My memory and sense […]

Read More...

4 comments

Do my morning exercises

Do my morning exercises

As little as ten years ago I would wake up and get out of bed without a thought. Such bliss, such joy. Now when I wake up I always feel horribly stiff. It’s a huge effort to turn over onto my back so I can swing my legs out of bed and sit on the […]

Read More...

2 comments

Time To Make Your Life Easier

Time To Make Your Life Easier

Do you have MS? Don’t you think its time to make your life easier? I should know, I am always trying do it. What can YOU do so you do not feel fatigued living your life?  Its important to enjoy yourself and have a good quality of life. Time to make your life easier I’m […]

Read More...

5 comments

Sticky electrodes and my FES

Sticky electrodes and my FES

I started using a Functional Electrical Stimulation (FES) in January 2014. It has been my game changer. Without the sticky electrodes and my FES I would probably have to use a wheelchair around the house. Hold on a moment, I would definitely have to use a wheelchair. Instead I have a different life. Sticky electrodes and my […]

Read More...

2 comments

Walking is sensible exercise

Walking is sensible exercise

Walking is sensible exercise. It is gentle, and it is low impact. It’s simple and effective. Even better, its free. Sensible exercise is about increasing your general activity and finding things to do that you enjoy. OK, I know that some of you can’t walk, it must be so frustratng. I can’t walk unless I […]

Read More...

0 comments

I Need A Two Wheeled Walking Frame

I Need A Two Wheeled Walking Frame

I have come to the conclusion that I need a Two Wheeled Walking Frame. Coming to this conclusion did not make me feel happy. Would a zimmerframe mean that I would be less likely to fall over? Am I a step closer to always needing to use a wheelchair? Is this another tipping point on my journey […]

Read More...

4 comments

A Letter to Multiple Sclerosis

A Letter to Multiple Sclerosis

A Letter to Multiple Sclerosis You first visited me a long time ago. It was 1972, I was 18 and having a pint or two of beer. I went to the loo for a pee but nothing happened. In 1979 I had a serious bladder spasm and I wet myself at work. You went away […]

Read More...

2 comments

I cannot do things I once took for granted

I cannot do things I once took for granted

Everyone knows Multiple sclerosis is a horrible disease. Now I cannot do things I once took for granted, its the Multiple Sclerosis. Its taken a long time but I thinks it has finally got me. I get so frustrated. I cannot do things I once took for granted Am I wrong? I don’t think so. […]

Read More...

2 comments

Wobble Cushion

Wobble Cushion

I bought a Wobble Cushion in 2012. My balance was much better then than it is now in 2016 multiple sclerosis has killed off my walking and sense of balance.. Nowadays I cannot walk unaided. So what is a wobble cushion? The best description is to imagine a rubber cushion filled with air and it is made […]

Read More...

1 comment

Bath or Shower Locking Suction Cup Handles

Bath or Shower Locking Suction Cup Handles

Years ago when I climbed into a bath I just knew it is going to be difficult to get out. Then my disease progressed and I needed help with balance and standing up in the shower. The shower is in the bath so I had to climb into the bath first of all. How did […]

Read More...

3 comments

A Very Wet Phone and 5 Rules to Dry it

A Very Wet Phone and 5 Rules to Dry it

Does your mobile phone float? Mine fell into the loo. I had a very wet phone. A very wet phone and 5 rules to dry it. Let’s start at the beginning I’m a bloke and I keep my phone in the breast pocket of my shirt. If I bend over at the waist I will fall […]

Read More...

0 comments

Toilet Frame with Adjustable Height and Width

Toilet Frame with Adjustable Height and Width

There time may well come when a Toilet Frame with Adjustable Height and Width is very helpful when you need to sit down or get up from the loo. Be as independent as possible. This toilet frame is designed to give you that independence. It will make life just that little bit easier even if you […]

Read More...

0 comments

Height adjustable round shower stool

Height adjustable round shower stool

The Height adjustable round shower stool has a lightweight frame.  It is an essential item to have in the wet room or bathroom at home. I have advanced MS and my balance and mobility are very poor. Now I must sit on a stool when I use the wash-hand basin as well as in the shower. […]

Read More...

0 comments

A sense of balance

A sense of balance

Many MSers who have SPMS do not have very good sense of balance. Now imagine this, you are momentarily distracted, you lose your sense of balance and fall over. As you fall over you put out a hand to protect yourself and you dislocate a shoulder. I’m guilty as charged. Do you see what I […]

Read More...

0 comments

She’s gone

She’s gone

My ability to get up and go, where has it gone? That’s something I used to take for granted. There is something I used tol take for granted –  it is something called balance. The loss of it has a profound affect on everything I do. Do you know that walking is 80% balance? So […]

Read More...

0 comments

Balance

Balance

Balance, its something you take for granted Balance, its a complex matter. Something you take completely for granted. You never think how many of the day to day activities involve balance. Take these examples, climbing a flight of stairs , running, carrying a cup even just  sitting on a chair all of these require balance. […]

Read More...

2 comments

Double Vision

Double Vision

I’m not too sure which is worse, double vision, drop-foot or squiffy balance.  At the moment the double vision wins hands down, ruins my quality of life. I had double vision this afternoon,  walked to the supermarket with my rollator, and I had to do everything with one eye shut all the time. I have […]

Read More...

3 comments

Length of a Walking Stick

Length of a Walking Stick

A walking stick is the lightest walking aid to help with balance when walking.  It is not designed to be used as a crutch to support your full weight. A stick sends a signal to tell people that your balance is not perfect. So if you are a bit wobbly on your legs use a […]

Read More...

2 comments

Wrist weights help my balance

Wrist weights help my balance

My sense of balance has been steadily getting worse, multiple sclerosis is the culprit. What can I do to reduce the rate of deterioration? I’m sure exercise, particularly walking, helps me to have good balance. Wrist Weights help my balance and I did not realise how much I use my balance until I started to lose it. […]

Read More...

1 comment