MS articles

Hello, I’m Patrick and I run this website. I have secondary progressive multiple sclerosis, disabled by drop foot and owner of a wonky bladder. Here are interesting articles about MS, not necassarily just about my MS. I want to make people more aware of MS and the effect it has on upon people’s lives. My MS does not affect just me, it has an effect upon everyone I know.

Totally unrestricted and able to move easily

Totally unrestricted and able to move easily

There was a wonderful time when I had felt totally unrestricted and able to move easily. Even on the fateful day in 1995 when the consultant diagnosed me with multiple sclerosis I was just a normal guy. Multiple sclerosis, I had never heard of it. I had to look it up in an encyclopaedia and […]

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Imagine life without multiple sclerosis

Imagine life without multiple sclerosis

Sometimes I like to play a simple mental game. Picture myself going up a flight of stairs. Maybe I can see myself walking to the shops and then carry the shopping back home. Drive the car instead of using the bus. I can still visualize myself striding out for a walk with the dog, not […]

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Who knows where the time goes?

Who knows where the time goes?

Back in the day I used to get up just after 7, help my wife get the children up, have breakfast and be at work by 9. Nowadays I get up by 8.30 and I’m not downstairs eating breakfast until 9.30. That was all 20 years ago Who knows where the time goes? It’s not […]

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Why multiple sclerosis makes me anxious

Why multiple sclerosis makes me anxious

Multiple sclerosis is a scary disease. It’s progressive and unpredictable.  As it progresses you become less capable of undertaking physical activities. You are very aware of its progress. It is no great surprise that sufferers are apprehensive of what the future holds for them. This uncertainty is often the cause of stress and anxiety. Why […]

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Time To Make Your Life Easier

Time To Make Your Life Easier

Do you have MS? Don’t you think its time to make your life easier? I should know, I am always trying do it. What can YOU do so you do not feel fatigued living your life?  Its important to enjoy yourself and have a good quality of life. Time to make your life easier I’m […]

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7th Multiple Sclerosis Research Day

7th Multiple Sclerosis Research Day

This was the 7th Multiple Sclerosis Research day. The idea was originally started by Professor Giovannoni in 2009. Initially other academics and experts in the field of multiple sclerosis attended and very few sufferers. 7th Multiple Sclerosis Research Day This has now changed completely. The day is organised for sufferers and their carers. The day […]

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Walking is sensible exercise

Walking is sensible exercise

Walking is sensible exercise. It is gentle, and it is low impact. It’s simple and effective. Even better, its free. Sensible exercise is about increasing your general activity and finding things to do that you enjoy. OK, I know that some of you can’t walk, it must be so frustratng. I can’t walk unless I […]

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A Letter to Multiple Sclerosis

A Letter to Multiple Sclerosis

A Letter to Multiple Sclerosis You first visited me a long time ago. It was 1972, I was 18 and having a pint or two of beer. I went to the loo for a pee but nothing happened. In 1979 I had a serious bladder spasm and I wet myself at work. You went away […]

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Multiple Sclerosis Specialist Advice

Multiple Sclerosis Specialist Advice

I have been following blogs and visiting MS forums recently. Yup these have all been MS related, no surprises there. There was one startling conclusion that I have come to. People seem happy to live with their problems and reluctant to talk to MS specialists. MS sufferers need to find someone who can give Multiple […]

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British Summer Time Returns

British Summer Time Returns

The last full weekend in March, British Summer Time returns 🙂 . The clocks go forward an hour and everything else takes a great leap forward. Finally its bye-bye to winter, Spring is now well under way. British Summer Time returns In the woods and the garden there are signs that everything is waking up. […]

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Look Forward And Not Look Back

Look Forward And Not Look Back

Are you a person who will look forward and not look back? Do you try to move forward and take on new challenges? Alternatively are you a person who wants to keep hold of the past and not let go of it? Technology is moving forward very quickly but I am not talking about that. […]

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They say they have MS and run a marathon

They say they have MS and run a marathon

You say you have MS and run a marathon. I think that is a contradiction. Should someone who runs a long way state they have MS? Do they understand what MS is really like? It’s the elephant in my room 24/7 it stands over me, watching my every move. This elephant is waiting to catch me […]

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Can You Cure Multiple Sclerosis

Can You Cure Multiple Sclerosis

Can you cure multiple sclerosis (MS)? It is a question that would always receive a negative reply. Recent medical developments, described as miraculous, can now lead to a cure for MS. People newly diagnosed with Relapsing Remitting Multiple Sclerosis (RRMS) can have their immune system rebooted using stem cells extracted from their bone marrow.  Before […]

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MIS416 A New Drug For Secondary Progressive MS

MIS416 A New Drug For Secondary Progressive MS

MIS416 a new drug for Secondary Progressive MS. It stimulates a range of responses in the immune system and it is being tested to find out if it is an effective treatment for SPMS. The drug is based on teenage acne bacteria; it can fill an adolescent with anxiety over a face full of blemishes. MIS416 is […]

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Regional Driving Assessment Centre

Regional Driving Assessment Centre

The Regional Driving Assessment Centre has been in existence since 1998. It is one of 17 driving assessment centres throughout the country. It is an accredited member of the Forum of Mobility Centres.  The Regional Driving Assessment Centre helps over 1500 people a year. Most of whom are able to return to driving or start driving […]

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Diagnosed with MS And You Drive A Car

Diagnosed with MS And You Drive A Car

If you are diagnosed with MS (multiple sclerosis) and you drive a car then here is some good news. Most people can continue driving There are one or two hoops that you must now jump through when you get the diagnosis. You must tell the Driver and Vehicle Licensing Agency (DVLA) that you have been […]

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Do Hospital Gardens Aid Recovery?

Do Hospital Gardens Aid Recovery?

Hospital gardens can help patients with recovery. They will spend less time in hospital. A garden provides access to active exercise and can instill a desire to live My experience in 2009 I was working in Hamburg when I fell over, cracked two ribs and punctured a lung. After the operation to insert a tube to […]

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Memory is definitely getting

Memory is definitely getting

The Cognitive Rehabilitation for Attention and Memory in people with Multiple Sclerosis (CRAMMS) study will focus on these MS related symptoms and begin to recruit patients in April 2015. I already know that I have a very poor memory. What do I use to help my memory and make my life with multiple sclerosis that little bit easier? The […]

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Hydrotherapy and multiple sclerosis

Hydrotherapy and multiple sclerosis

Hydrotherapy, some people call it about physiotherapy in water or even aquatic physiotherapy Power of Gravity When walking around doing the day to day activities we tend to forget about gravity. Gravity is everywhere, its keeping things on the ground. Pour water out of a jug. It is the effect of gravity that makes the […]

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Social impact of multiple sclerosis

Social impact of multiple sclerosis

MS can bring families together, but is equally capable of tearing relationships apart. The consequences of MS are very variable as well as being indiscriminate and destructive. People want to be sociable We all want an enjoyable social life. That could be going out and enjoying a drink or dinner with friends, going shopping or […]

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Are You a Frequent Faller? I Am.

Are You a Frequent Faller? I Am.

  Only too often people with SPMS are described as frequent fallers; I am.  There are usually only a couple of reasons but you ignore them at your own peril. Drop foot I have a leg that does not do what it is told, sometimes known as drop foot. I’m unable to lift my left […]

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Disabled University Lecturer Continues Campaigning

Disabled University Lecturer Continues Campaigning

Frank Adams, 50 from Holmfirth near Huddersfield who lives with severely restricted mobility, has continued to campaign and educate academic and non-academics about disability, thanks to a remarkable drive-from-wheelchair Sirus car. Frank’s career The majority of his career has been focused on improving accessibility for people living with disabilities. He was diagnosed with Polio at […]

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Information you need to know

Information you need to know

I am going to tell you information that I think is important. One is about your consultant and the other refers to multiple sclerosis and the two are linked. This is information that my consultant Professor Giovannoni talks about in his blog and I feel it is vitally important that other people know this. It’s […]

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MS Awareness

MS Awareness

Multiple Sclerosis, so many people know the words but they are unaware how MS affects a person? So many people do not know the impact this disease has upon people’s lives. It usually strikes when you are young and your life is in front of you. Worst of all, it is a progressive disease. The […]

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Multiple Sclerosis and Tai Chi

Multiple Sclerosis and Tai Chi

Tai Chi is a Chinese martial art. Shibashi, a form of Tai Chi, are 18 simple exercises that are easy to learn Recently I attended a physiotherapy session at the MS Therapy Centre at Halton where I was introduced to the Shibashi exercise routines. Multiple Sclerosis and Tai Chi Shibashi are coordinated movements performed in a […]

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The invisible disease

The invisible disease

Multiple Sclerosis the disease is now a part of me. It first affected me in 1972 but who could say what it was when it first arrived and began to infect me. I had no idea that there was anuthing wrong with me When I was younger I used to play rugby at school, run […]

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The symptoms and progression of MS

The symptoms and progression of MS

The symptoms and progression of MS are unique for everyone. It is both a complicated and complex disease. I believe that Relapsing Remitting Multiple Sclerosis and Secondary Progressive Multiple Sclerosis are different diseases. I always thought this was a possibility. RRMS comes and goes, SPMS gradually nibbles away at the central nervous system and the […]

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Hyperbaric Oxygen Therapy

Hyperbaric Oxygen Therapy

What is hyperbaric oxygen (HBO) therapy? It is treatment when a patient breathes in pure oxygen while under increased air pressure. This increases the oxygen content in the blood and consequently in different body tissues. It is an accepted treatment for some medical conditions such as burns, decompression sickness or the bends, severe infections, radiation-induced tissue […]

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Brenda Escreet & her ‘Harley Davidson’ TGA Mobility Scooter

Brenda Escreet & her ‘Harley Davidson’ TGA Mobility Scooter

Despite living with Multiple Sclerosis, Brenda Escreet, 66 from Lancashire continues to attend numerous music festivals and gigs, support several charities and have ‘biking’ freedom outdoors thanks to her TGA Supersport mobility scooter. Disabled Ramblers Brenda was originally born in Lancashire and after a period living in London now lives back in her native county. […]

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Diagnosis, what next?

Diagnosis, what next?

You have been diagnosed with Relapsing Remitting Multiple Sclerosis (RRMS), this happened to me in 1995. How many of you have been offered a disease modifying therapy (DMT) and when were you diagnosed? You try disguising a fall When I was diagnosed with MS I was not offered any treatment because none was available. I […]

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MS Clinics, reducing missed appointments

MS Clinics, reducing missed appointments

South Devon Health Care tested a scheme at Newton Abbot Community Hospital for multiple sclerosis patients. Normally the patients would have to attend a clinic at Torbay hospital, approximately 10 miles away.  The trial scheme to give people with MS access to services at Newton Abbot Community Hospital  has resulted in fewer missed appointments. Specialist […]

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Staring Into Space

Staring Into Space

‘Hey you, stop staring into space’. How many times did the teacher at school say that? Your imagination was away in the clouds and you had switched-off completely. When the moment came you could always switch-on again and be back to a fully functioning person Now you lose the plot Now when you catch yourself […]

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Multiple Sclerosis is a Form of Dementia?

Multiple Sclerosis is a Form of Dementia?

Professor Giavannoni has put the cat amongst the pigeons by saying that MS is a form of dementia. The definition of dementia is Dementia is a loss of mental ability severe enough to interfere with normal activities of daily living, lasting more than six months, not present since birth, and not associated with a loss […]

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You’ve Been Diagnosed with Multiple Sclerosis

You’ve Been Diagnosed with Multiple Sclerosis

 ‘You’ve been diagnosed with multiple sclerosis’ Six words you do not want to hear. Did not tick the box on the mortgage application form for life cover, I didn’t. Its too late now to insure your health, so you’ve just got to shrug your shoulders. Its even more important to plan for the future. Yup, […]

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Manage Your Life and Depression

Manage Your Life and Depression

It’s not an easy task to manage your life and depression. It’s even worse if you have a progressive illness. Your life and your capabilities are being nibbled away bit by bit. It is no wonder that you feel sad and dejected maybe even rejected. Depression is curable Oh yes these are strong words but […]

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Multiple sclerosis patients are missing out on drugs

Multiple sclerosis patients are missing out on drugs

The BBC has published a report that shows too many multiple sclerosis (MS) patients are missing out on drugs. A survey of more than 10,000 adults with MS showed that many were missing out on the seven licensed medicines approved for use. Access to disease modifying treatments (DMT) varied across the four countries of the […]

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