Living With MS
Life in a MS houeshold
Bed is the only place for you
Thursday 30th of April arrived I felt decidedly second-hand when I woke up and it went downhill from there. I felt as if I had been rejected by the local rubbish dump. Eventually I retired to bed very early in the evening. MrsB took my temperature, 38.3 and added. “Yup, bed is the only place […]
Feeling of being flattened by a steamroller
Do you remember a blog I wrote a month ago? The Department of Work and Pensions (DWP) summoned me to an interview. I arrived at the appointed hour and came out 30 minutes later feeling as if I had been mauled by an angry lion or flattened by a steam roller. This will definitely not rank […]
MrsB and I went go on a London Road Trip
MrsB and I went on a London road trip on Saturday 18th March. See the Hockney exhibition at the Tate Britain and then on to the Coliseum to see Pirates of Penzance. It’s always the other little events that make the day interesting. The Road Trip MrsB and I travelled into London independently. I arrive […]
Imagine life without multiple sclerosis
Sometimes I like to play a simple mental game. Picture myself going up a flight of stairs. Maybe I can see myself walking to the shops and then carry the shopping back home. Drive the car instead of using the bus. I can still visualize myself striding out for a walk with the dog, not […]
MS claims another activity this time a close shave
I have suffered from multiple sclerosis for more years than I care to remember. Quite how I have managed to live this long has been a big surprise to both me and The Wife. Life has been a series of close shaves. Far more than I would ever want to admit. Diagnosed with MS in […]
DWP invite me to a meeting, The Department for Work and Pensions
The postman delivered a buff brown envelope on the 7th Feb. The Wife gave it to me. The return address was DWP, PO Box 585, Belfast. Straightaway I said, “Oh this is something about my disability allowance”. Instead the DWP invite me to a meeting, much more sinister. The basic gist was as follows The […]
Sometimes I want a bit of stress
We can all recall moments when stress has got the better of us. Moments of bad stress might include road rage, trolley rage, package rage and even computer rage. All caused by heightened anger or frustration. Sometimes I want a bit of stress. Sometimes I want a bit of stress Stress like this lasts for […]
Is liberation and freedom just a Botox away?
On Wednesday 1st Feb I went to Queens Square to receive Botulinium Toxin or Botox injections into my bladder. I had wanted the injections for over two years. Life with a badly behaved as well as irritable bladder is no joke. I had learnt a lot of techniques to make life with this handicap easier. […]
What would I like returned to me by Multiple Sclerosis?
What would I like returned to me by Multiple Sclerosis? I’m talking about basic abilities, ones I have lost for ever. The list is far too long to bore you. In my dreams there is only I would like back. I’m sure it’s something lots of people take for granted. Right now I am really […]
Red Telescopic Anti-Shock Hiking Walking Stick
This is a simple and sturdy Red Telescopic Anti-Shock Hiking Walking Stick. It is telescopic so you can also use it as a walking pole. It has a non slip handle that means it is easy to hold it as a walking stick. There is strap that you can put round your wrist so you cannot […]
Who knows where the time goes?
Back in the day I used to get up just after 7, help my wife get the children up, have breakfast and be at work by 9. Nowadays I get up by 8.30 and I’m not downstairs eating breakfast until 9.30. That was all 20 years ago Who knows where the time goes? It’s not […]
MSitis and the story of the forgotten catheters
Saturday 7 January 2017 and five of us go up to London to see The Dresser, a play starring Tom Stott and Reece Shearsmith showing at The Duke of York theatre. It was a great production, loved it but not so keen on the disabled loo in the theatre. Horribly cramped, in fact not enough […]
I wake up every night to visit the lavatory
I saw my MS consultant for the annual visit in November 2016. He asked me if there were any changes since my last visit to the clinic. I said to him “Now I wake up every night to visit the lavatory and have a tiny pee”‘ I wake up every night to have a pee […]
How to have a happy Christmas dinner
The problem is how to have a happy Christmas dinner. I’m the one who needs to take things gently,. Pogressive MS, this dreadful disease makes me clumsy and inept. I can easily fall over or lose my balance so it is vital that I spread the work over the day. That’s the theory, if only […]
Every morning its four sticky FES electrodes
Every morning its four sticky FES electrodes. I must put them on my left leg. Two go onto my thigh and two go just below the knee. I started using the FES two years ago in December 2014. I estimate that I have taken the sticky electrodes off about 720 times and put them back […]
Going away for a short break
Going away for a short break used to be so easy. The hardest part was deciding where to go. The wife and I would finally agree on a place. From then on it was a simple process. Throw a few clothes into a suitcase, grab a book, car keys, wallet and the cheque book and […]
WorldvsMS challenge and The Amsterdam HACK
The WordvsMS campaign is an initiative that had been setup to give a voice to people with Multiple Sclerosis. The campaign has asked people with MS to list their challenges in everyday life. Three challenges were accepted from 103 that were submitted A weekend in mid-November was selected when groups of people were invited to […]
Finally I think progress is being made
A couple of weeks ago I wrote a post expressing my frustration with trying to get Botox treatment for my bladder. If you missed the post and would like to read it then please click HERE. Yes, I was unbelievably frustrated. Overnight the hospital had shunted my appointment from the next day to March next […]
Man still needs Botox for his bladder
I need Botox injections to control my bladder spasticity. This issue has been rocking around my locker for more than a couple of years. I have written about these problems far too often. You must be bored with them. Even I admit this subject does not come top of my reading list. Well read on, […]
Going back to Pilates
I have missed my last four Pilates’ sessions. They are on a Friday morning but I have been away. Going back to Pilates was a bit like going back to school after the Easter or Christmas break. Going back to Pilates Don’t get me wrong I enjoy Pilates. It helps me with the biggest problems […]
I use incontinence pads
Oooo, this is a difficult subject It is something I had to man-up to quite seriously several years ago. I have had bladder problems since I was a young man, multiple sclerosis has a lot to answer for 🙁 Nowadays I sometimes use incontinence pads because of the irritable bladder. I only wear normal underwear […]
Its when the unexpected happens
Its when the unexpected accident happens. Inevitably I get stressed and this feeling lasts for a couple of hours. When I am feeling fragile it does not take much to tip me over the edge. Most of the time I’m as tough as old boots. Its when the unexpected happens The problem is the MS. My memory and sense […]
MS Society MSLIFE2016 Exhibition
Over the weekend 17/18 September the MS Society held its biennial exhibition, The MS Society MSLIFE2016 Exhibition MS Society MSLIFE2016 Exhibition I went there on the first day and arrived at about 12.30. There was expectation and excitement from the moment I walked into the exhibition as well as a noisy atmosphere. During the day I […]
Do my morning exercises
As little as ten years ago I would wake up and get out of bed without a thought. Such bliss, such joy. Now when I wake up I always feel horribly stiff. It’s a huge effort to turn over onto my back so I can swing my legs out of bed and sit on the […]
Time To Make Your Life Easier
Do you have MS? Don’t you think its time to make your life easier? I should know, I am always trying do it. What can YOU do so you do not feel fatigued living your life? Its important to enjoy yourself and have a good quality of life. Time to make your life easier I’m […]
Seven days during the Rio Olympics
There are days when living with MS is really not too bad and there are days when it is awful. There are even days when it can be exciting. This has been a week when I have gone through all of these emotions and more. I even broke my Leki walking stick in a dramatic […]
Sticky electrodes and my FES
I started using a Functional Electrical Stimulation (FES) in January 2014. It has been my game changer. Without the sticky electrodes and my FES I would probably have to use a wheelchair around the house. Hold on a moment, I would definitely have to use a wheelchair. Instead I have a different life. Sticky electrodes and my […]
I had a wonderful sailing holiday
I had a wonderful sailing holiday Earlier this year in 2016 I had a wonderful sailing holiday. Click HERE to read about it. I signed up to go sailing with the JST (Jubilee Sailing Trust) on the Lord Nelson. It was a six day trip from Southampton to France and back to Southampton. Help me […]
An invisible physical disability
Are you like me? I suffer from an invisible physical disability. Do these statements sound familiar? “Crikey I didn’t know you were disabled”. Or maybe someone said “You don’t look disabled”. Sometimes it’s even “You look healthy”, and then they deserve a slap. An invisible physical disability Millions of us in Briton have a hidden disability. […]
A Simple Decision Every Morning
There are decisions I must make every day from the moment I wake up. I have to make a simple decision every morning when I get dressed. The result depends upon the mood I am in, how I feel when I wake up. It is my decision and it affects me for the rest of the […]
My Badly Behaved Bladder
Sometimes you just want your MS problems to go away. I know the severity is different for everyone but there are times when the niggles just get to be too much. My badly behaved bladder has been around for over 35 years. Slightly longer than I have been married. My badly behaved bladder Its not […]
Living with multiple sclerosis is no laughing matter
Two reasons why living with multiple sclerosis is no laughing matter. Saturday 24 June I always look forward to Saturday. Not because it’s the end of the week. Not because it’s the start of the weekend. It’s the day I go to the local bakery buy bread and Chelsea Buns. Last Saturday came round and […]
Some things I simply do not see
Vision is a bit of a mystery to me at times. Some things I can see perfectly well and some things I simply do not see. I know my vision is not 20/20 🙁 I always have to wear a pair of glasses, I even have special reading glasses. Some things I simply do not […]
12 June 2016
Diary 12 June 2016 Here’s something to think about. It’s a quote from Mary Kay Ash, an American businesswoman and founder of Mary Kay Cosmetics. “There are two things people want more than sex and money; recognition and praise”. In case you were wondering the Travelscoot that was for sale has been sold. I have […]
The FES has been a life changer
An FES was originally fitted over 18 months ago to help my footdrop. There is no doubt the FES has been a life changer. It makes me feel more confident, I have better balance and a definite ‘I-can-do’ feeling. OK so I still need to use a rollator. The FES has been a life changer At […]
I Need A Two Wheeled Walking Frame
I have come to the conclusion that I need a Two Wheeled Walking Frame. Coming to this conclusion did not make me feel happy. Would a zimmerframe mean that I would be less likely to fall over? Am I a step closer to always needing to use a wheelchair? Is this another tipping point on my journey […]
